Data-Sharing Politics and the Logics of Competition in Biobanking

Aaro Mikael Tupasela

doi:10.1007/978-3-319-55651-2_8

Data-Sharing Politics and the Logics of Competition in Biobanking

Aaro Mikael Tupasela

Section of Health Services Research

2 Citations (Scopus)

Abstract

This chapter explores the challenges associated with the competition logics of large prospective cohort (LPC) biobanks within the European context by identifying the challenges associated with the sharing of samples and data. LPC biobanking involves large collections of human tissue samples from specific populations (usually national). The collections are from, usually, healthy donors who are then tracked over decades to see what diseases they develop over the course of their lifespan. LPC biobanks, therefore, also collect large amounts of health and lifestyle information that can be attributed to the tissue samples collected from the donors. The chapter evaluates the emerging tension between policies and practices in LPC biobanking with reference to the sharing of samples, and re-considers the applicability of social scientific theories that have sought to explain the emerging bio-economy.

Original language	English
Title of host publication	Bioeconomies : Life, Technology, and Capital in the 21st Century
Editors	Vincenzo Pavone, Joanna Goven
Number of pages	20
Publisher	Palgrave Macmillan
Publication date	18 Sept 2017
Edition	1.
Pages	187-206
Chapter	8
ISBN (Print)	978-3-319-55650-5
ISBN (Electronic)	978-3-319-55651-2
DOIs	https://doi.org/10.1007/978-3-319-55651-2_8
Publication status	Published - 18 Sept 2017

Keywords

Faculty of Health and Medical Sciences
Biobanking
bioeconomy
data-sharing
Open Access
Cohort
biocapital
biovalue
Genetics, Population

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1007/978-3-319-55651-2_8

Cite this

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title = "Data-Sharing Politics and the Logics of Competition in Biobanking",

abstract = "This chapter explores the challenges associated with the competition logics of large prospective cohort (LPC) biobanks within the European context by identifying the challenges associated with the sharing of samples and data. LPC biobanking involves large collections of human tissue samples from specific populations (usually national). The collections are from, usually, healthy donors who are then tracked over decades to see what diseases they develop over the course of their lifespan. LPC biobanks, therefore, also collect large amounts of health and lifestyle information that can be attributed to the tissue samples collected from the donors. The chapter evaluates the emerging tension between policies and practices in LPC biobanking with reference to the sharing of samples, and re-considers the applicability of social scientific theories that have sought to explain the emerging bio-economy.",

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AB - This chapter explores the challenges associated with the competition logics of large prospective cohort (LPC) biobanks within the European context by identifying the challenges associated with the sharing of samples and data. LPC biobanking involves large collections of human tissue samples from specific populations (usually national). The collections are from, usually, healthy donors who are then tracked over decades to see what diseases they develop over the course of their lifespan. LPC biobanks, therefore, also collect large amounts of health and lifestyle information that can be attributed to the tissue samples collected from the donors. The chapter evaluates the emerging tension between policies and practices in LPC biobanking with reference to the sharing of samples, and re-considers the applicability of social scientific theories that have sought to explain the emerging bio-economy.

KW - Faculty of Health and Medical Sciences

KW - Biobanking

KW - bioeconomy

KW - data-sharing

KW - Open Access

KW - Cohort

KW - biocapital

KW - biovalue

KW - Genetics, Population

U2 - 10.1007/978-3-319-55651-2_8

DO - 10.1007/978-3-319-55651-2_8

M3 - Book chapter

SN - 978-3-319-55650-5

SP - 187

EP - 206

BT - Bioeconomies

A2 - Pavone, Vincenzo

A2 - Goven, Joanna

PB - Palgrave Macmillan

ER -

Data-Sharing Politics and the Logics of Competition in Biobanking

Abstract

Keywords

UN SDGs

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