Data-Sharing Politics and the Logics of Competition in Biobanking

Aaro Mikael Tupasela

doi:10.1007/978-3-319-55651-2_8

Data-Sharing Politics and the Logics of Competition in Biobanking

Aaro Mikael Tupasela

Afdeling for Sundhedstjenesteforskning

2 Citationer (Scopus)

Abstract

This chapter explores the challenges associated with the competition logics of large prospective cohort (LPC) biobanks within the European context by identifying the challenges associated with the sharing of samples and data. LPC biobanking involves large collections of human tissue samples from specific populations (usually national). The collections are from, usually, healthy donors who are then tracked over decades to see what diseases they develop over the course of their lifespan. LPC biobanks, therefore, also collect large amounts of health and lifestyle information that can be attributed to the tissue samples collected from the donors. The chapter evaluates the emerging tension between policies and practices in LPC biobanking with reference to the sharing of samples, and re-considers the applicability of social scientific theories that have sought to explain the emerging bio-economy.

Originalsprog	Engelsk
Titel	Bioeconomies : Life, Technology, and Capital in the 21st Century
Redaktører	Vincenzo Pavone, Joanna Goven
Antal sider	20
Forlag	Palgrave Macmillan
Publikationsdato	18 sep. 2017
Udgave	1.
Sider	187-206
Kapitel	8
ISBN (Trykt)	978-3-319-55650-5
ISBN (Elektronisk)	978-3-319-55651-2
DOI	https://doi.org/10.1007/978-3-319-55651-2_8
Status	Udgivet - 18 sep. 2017

Emneord

Det Sundhedsvidenskabelige Fakultet

FN’s Verdensmål

Dette resultat bidrager til følgende verdensmål

Adgang til dokumentet

10.1007/978-3-319-55651-2_8

Citationsformater

@inbook{15f78d3f70a84a42a049f131eab3ad58,

title = "Data-Sharing Politics and the Logics of Competition in Biobanking",

abstract = "This chapter explores the challenges associated with the competition logics of large prospective cohort (LPC) biobanks within the European context by identifying the challenges associated with the sharing of samples and data. LPC biobanking involves large collections of human tissue samples from specific populations (usually national). The collections are from, usually, healthy donors who are then tracked over decades to see what diseases they develop over the course of their lifespan. LPC biobanks, therefore, also collect large amounts of health and lifestyle information that can be attributed to the tissue samples collected from the donors. The chapter evaluates the emerging tension between policies and practices in LPC biobanking with reference to the sharing of samples, and re-considers the applicability of social scientific theories that have sought to explain the emerging bio-economy.",

keywords = "Faculty of Health and Medical Sciences, Biobanking, bioeconomy, data-sharing, Open Access, Cohort, biocapital, biovalue, Genetics, Population",

author = "Tupasela, {Aaro Mikael}",

year = "2017",

month = sep,

day = "18",

doi = "10.1007/978-3-319-55651-2_8",

language = "English",

isbn = "978-3-319-55650-5",

pages = "187--206",

editor = "Vincenzo Pavone and Joanna Goven",

booktitle = "Bioeconomies",

publisher = "Palgrave Macmillan",

address = "United Kingdom",

edition = "1.",

}

TY - CHAP

T1 - Data-Sharing Politics and the Logics of Competition in Biobanking

AU - Tupasela, Aaro Mikael

PY - 2017/9/18

Y1 - 2017/9/18

N2 - This chapter explores the challenges associated with the competition logics of large prospective cohort (LPC) biobanks within the European context by identifying the challenges associated with the sharing of samples and data. LPC biobanking involves large collections of human tissue samples from specific populations (usually national). The collections are from, usually, healthy donors who are then tracked over decades to see what diseases they develop over the course of their lifespan. LPC biobanks, therefore, also collect large amounts of health and lifestyle information that can be attributed to the tissue samples collected from the donors. The chapter evaluates the emerging tension between policies and practices in LPC biobanking with reference to the sharing of samples, and re-considers the applicability of social scientific theories that have sought to explain the emerging bio-economy.

AB - This chapter explores the challenges associated with the competition logics of large prospective cohort (LPC) biobanks within the European context by identifying the challenges associated with the sharing of samples and data. LPC biobanking involves large collections of human tissue samples from specific populations (usually national). The collections are from, usually, healthy donors who are then tracked over decades to see what diseases they develop over the course of their lifespan. LPC biobanks, therefore, also collect large amounts of health and lifestyle information that can be attributed to the tissue samples collected from the donors. The chapter evaluates the emerging tension between policies and practices in LPC biobanking with reference to the sharing of samples, and re-considers the applicability of social scientific theories that have sought to explain the emerging bio-economy.

KW - Faculty of Health and Medical Sciences

KW - Biobanking

KW - bioeconomy

KW - data-sharing

KW - Open Access

KW - Cohort

KW - biocapital

KW - biovalue

KW - Genetics, Population

U2 - 10.1007/978-3-319-55651-2_8

DO - 10.1007/978-3-319-55651-2_8

M3 - Book chapter

SN - 978-3-319-55650-5

SP - 187

EP - 206

BT - Bioeconomies

A2 - Pavone, Vincenzo

A2 - Goven, Joanna

PB - Palgrave Macmillan

ER -

Data-Sharing Politics and the Logics of Competition in Biobanking

Abstract

Emneord

FN’s Verdensmål

Adgang til dokumentet

Fingeraftryk

Citationsformater