Biobanking: Ethical Issues

Klaus  Hoeyer

doi:10.1016/B978-0-08-097086-8.82057-7

Biobanking: Ethical Issues

Abstract

This article outlines the main ethical issues debated in relation to population-based genetic research biobanks. There aremany types of biobanking, but few have attracted as much ethical attention as population-based ones. Some possible reasonsfor this are discussed along with considerations of the political landscape of biobank ethics before the themes dominating theliterature are presented: consent to participation; good governance; fairness and reciprocity; commercialization; trust andtrustworthiness; and unintended effects such as breaches of confidentiality and privacy, surveillance, and social changes.

Original language	English
Title of host publication	International Encyclopedia of the Social & Behavioral Sciences : (Second Edition)
Editors	James D. Wright
Number of pages	6
Publisher	Elsevier
Publication date	26 Mar 2015
Edition	2
Pages	604-609
ISBN (Print)	9780080970868
ISBN (Electronic)	9780080970875
DOIs	https://doi.org/10.1016/B978-0-08-097086-8.82057-7
Publication status	Published - 26 Mar 2015

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10.1016/B978-0-08-097086-8.82057-7

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Biobanking: Ethical Issues

Abstract

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