Biobanking: Ethical Issues

Klaus  Hoeyer

doi:10.1016/B978-0-08-097086-8.82057-7

Biobanking: Ethical Issues

Abstract

This article outlines the main ethical issues debated in relation to population-based genetic research biobanks. There aremany types of biobanking, but few have attracted as much ethical attention as population-based ones. Some possible reasonsfor this are discussed along with considerations of the political landscape of biobank ethics before the themes dominating theliterature are presented: consent to participation; good governance; fairness and reciprocity; commercialization; trust andtrustworthiness; and unintended effects such as breaches of confidentiality and privacy, surveillance, and social changes.

Originalsprog	Engelsk
Titel	International Encyclopedia of the Social & Behavioral Sciences : (Second Edition)
Redaktører	James D. Wright
Antal sider	6
Forlag	Elsevier
Publikationsdato	26 mar. 2015
Udgave	2
Sider	604-609
ISBN (Trykt)	9780080970868
ISBN (Elektronisk)	9780080970875
DOI	https://doi.org/10.1016/B978-0-08-097086-8.82057-7
Status	Udgivet - 26 mar. 2015

FN’s Verdensmål

Dette resultat bidrager til følgende verdensmål

Adgang til dokumentet

10.1016/B978-0-08-097086-8.82057-7

Citationsformater

@inbook{269188a0f996498f856cc352759f0193,

title = "Biobanking: Ethical Issues",

abstract = "This article outlines the main ethical issues debated in relation to population-based genetic research biobanks. There aremany types of biobanking, but few have attracted as much ethical attention as population-based ones. Some possible reasonsfor this are discussed along with considerations of the political landscape of biobank ethics before the themes dominating theliterature are presented: consent to participation; good governance; fairness and reciprocity; commercialization; trust andtrustworthiness; and unintended effects such as breaches of confidentiality and privacy, surveillance, and social changes.",

author = "Klaus Hoeyer",

year = "2015",

month = mar,

day = "26",

doi = "10.1016/B978-0-08-097086-8.82057-7",

language = "English",

isbn = "9780080970868",

pages = "604--609",

editor = "Wright, {James D.}",

booktitle = "International Encyclopedia of the Social & Behavioral Sciences",

publisher = "Elsevier",

address = "Netherlands",

edition = "2",

}

TY - ENCYC

T1 - Biobanking

T2 - Ethical Issues

AU - Hoeyer, Klaus

PY - 2015/3/26

Y1 - 2015/3/26

N2 - This article outlines the main ethical issues debated in relation to population-based genetic research biobanks. There aremany types of biobanking, but few have attracted as much ethical attention as population-based ones. Some possible reasonsfor this are discussed along with considerations of the political landscape of biobank ethics before the themes dominating theliterature are presented: consent to participation; good governance; fairness and reciprocity; commercialization; trust andtrustworthiness; and unintended effects such as breaches of confidentiality and privacy, surveillance, and social changes.

AB - This article outlines the main ethical issues debated in relation to population-based genetic research biobanks. There aremany types of biobanking, but few have attracted as much ethical attention as population-based ones. Some possible reasonsfor this are discussed along with considerations of the political landscape of biobank ethics before the themes dominating theliterature are presented: consent to participation; good governance; fairness and reciprocity; commercialization; trust andtrustworthiness; and unintended effects such as breaches of confidentiality and privacy, surveillance, and social changes.

U2 - 10.1016/B978-0-08-097086-8.82057-7

DO - 10.1016/B978-0-08-097086-8.82057-7

M3 - Encyclopedia chapter

SN - 9780080970868

SP - 604

EP - 609

BT - International Encyclopedia of the Social & Behavioral Sciences

A2 - Wright, James D.

PB - Elsevier

ER -

Biobanking: Ethical Issues

Abstract

FN’s Verdensmål

Adgang til dokumentet

Fingeraftryk

Citationsformater