TY - JOUR
T1 - The impact of existential vulnerability for nursing home doctors in end-of-life care: A focus group study
AU - Jansen, K
AU - Ruths, Sabine
AU - Malterud, Kirsti
AU - Schaufel, Margrethe Aase
PY - 2016/12/1
Y1 - 2016/12/1
N2 - Objective Explore the impact of existential vulnerability for nursing home doctors’ experiences with dying patients and their families. Methods We conducted a qualitative study based on three focus group interviews with purposive samples of 17 nursing home doctors. The interviews were audio-recorded, transcribed, and analyzed with systematic text condensation. Results Nursing home doctors experienced having to balance treatment compromises in order to assist patients’ and families’ preparation for death, with their sense of professional conduct. This was an arduous process demanding patience and consideration. Existential vulnerability also manifested as powerlessness mastering issues of life and death and families’ expectations. Standard phrases could help convey complex messages of uncertainty and graveness. Personal commitment was balanced with protective disengagement on the patient's deathbed, triggering both feelings of wonder and guilt. Conclusion Existential vulnerability is experienced as a burden of powerlessness and guilt in difficult treatment compromises and in the need for protective disengagement, but also as a resource in communication and professional coping. Practice implications End-of-life care training for nursing home doctors should include self-reflective practice, in particular addressing treatment compromises and professional conduct in the dialogue with patient and next-of-kin.
AB - Objective Explore the impact of existential vulnerability for nursing home doctors’ experiences with dying patients and their families. Methods We conducted a qualitative study based on three focus group interviews with purposive samples of 17 nursing home doctors. The interviews were audio-recorded, transcribed, and analyzed with systematic text condensation. Results Nursing home doctors experienced having to balance treatment compromises in order to assist patients’ and families’ preparation for death, with their sense of professional conduct. This was an arduous process demanding patience and consideration. Existential vulnerability also manifested as powerlessness mastering issues of life and death and families’ expectations. Standard phrases could help convey complex messages of uncertainty and graveness. Personal commitment was balanced with protective disengagement on the patient's deathbed, triggering both feelings of wonder and guilt. Conclusion Existential vulnerability is experienced as a burden of powerlessness and guilt in difficult treatment compromises and in the need for protective disengagement, but also as a resource in communication and professional coping. Practice implications End-of-life care training for nursing home doctors should include self-reflective practice, in particular addressing treatment compromises and professional conduct in the dialogue with patient and next-of-kin.
U2 - 10.1016/j.pec.2016.07.016
DO - 10.1016/j.pec.2016.07.016
M3 - Journal article
C2 - 27435980
SN - 0738-3991
VL - 99
SP - 2043
EP - 2048
JO - Patient Education and Counseling
JF - Patient Education and Counseling
IS - 12
ER -