State of Diabetes Self-Management Education in the European Union Member States and Non-EU Countries: The Diabetes Literacy Project

Henna Riemenschneider; Sarama Saha; Stephan van den Broucke; Helle Terkildsen Maindal; Gerardine Doyle; Diane Levin-Zamir; Ingrid Muller; Kristin Ganahl; Kristine Sørensen; Peter Chang; Dean Schillinger; Peter E.H. Schwarz; Gabriele Müller

doi:10.1155/2018/1467171

State of Diabetes Self-Management Education in the European Union Member States and Non-EU Countries: The Diabetes Literacy Project

Henna Riemenschneider, Sarama Saha, Stephan van den Broucke, Helle Terkildsen Maindal, Gerardine Doyle, Diane Levin-Zamir, Ingrid Muller, Kristin Ganahl, Kristine Sørensen, Peter Chang, Dean Schillinger, Peter E.H. Schwarz, Gabriele Müller

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Abstract

Background: Diabetes self-management education (DSME) is considered essential for improving the prevention and care of diabetes through empowering patients to increase agency in their own health and care processes. However, existing evidence regarding DSME in the EU Member States (EU MS) is insufficient to develop an EU-wide strategy.

Objectives: This study presents the state of DSME in the 28 EU MS and contrasts it with 3 non-EU countries with comparable Human Development Index score: Israel, Taiwan, and the USA (ITU). Because type 2 diabetes mellitus (T2DM) disproportionately affects minority and low-income groups, we paid particular attention to health literacy aspects of DSME for vulnerable populations.

Methods: Data from multiple stakeholders involved in diabetes care were collected from Feb 2014 to Jan 2015 using an online Diabetes Literacy Survey (DLS). Of the 379 respondents (249 from EU MS and 130 from ITU), most were people with diabetes (33% in the EU MS, 15% in ITU) and care providers (47% and 72%). These data were supplemented by an expert survey (ES) administered to 30 key informants.

Results: Access to DSME varies greatly in the EU MS: an average of 29% (range 21% to 50%) of respondents report DSME programs are tailored for people with limited literacy, educational attainment, and language skills versus 63% in ITU. More than half of adult T2DM patients and children/adolescents participate in DSME in EU MS; in ITU, participation of T1DM patients and older people is lower. Prioritization of DSME (6.1 ± 2.8 out of 10) and the level of satisfaction with the current state of DSME (5.0 ± 2.4 out of 10) in the EU MS were comparable with ITU.

Conclusion: Variation in availability and organization of DSME in the EU MS presents a clear rationale for developing an EU-wide diabetes strategy to improve treatment and care for people with diabetes.

Original language	English
Article number	1467171
Journal	Journal of Diabetes Research
Volume	2018
Pages (from-to)	1-11
ISSN	2314-6745
DOIs	https://doi.org/10.1155/2018/1467171
Publication status	Published - 2018
Externally published	Yes

Keywords

Adolescent
Adult
Diabetes Mellitus/therapy
European Union
Health Literacy
Humans
Israel
Patient Education as Topic
Patient Participation
Self Care
Self-Management
Taiwan
United States

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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State of Diabetes Self-Management Education in the European Union Member States and Non-EU Countries: The Diabetes Literacy ProjectFinal published version, 3.1 MB

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Riemenschneider, H., Saha, S., van den Broucke, S., Maindal, H. T., Doyle, G., Levin-Zamir, D., Muller, I., Ganahl, K., Sørensen, K., Chang, P., Schillinger, D., Schwarz, P. E. H., & Müller, G. (2018). State of Diabetes Self-Management Education in the European Union Member States and Non-EU Countries: The Diabetes Literacy Project. Journal of Diabetes Research, 2018, 1-11. Article 1467171. https://doi.org/10.1155/2018/1467171

Riemenschneider, H, Saha, S, van den Broucke, S, Maindal, HT, Doyle, G, Levin-Zamir, D, Muller, I, Ganahl, K, Sørensen, K, Chang, P, Schillinger, D, Schwarz, PEH & Müller, G 2018, 'State of Diabetes Self-Management Education in the European Union Member States and Non-EU Countries: The Diabetes Literacy Project', Journal of Diabetes Research, vol. 2018, 1467171, pp. 1-11. https://doi.org/10.1155/2018/1467171

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title = "State of Diabetes Self-Management Education in the European Union Member States and Non-EU Countries: The Diabetes Literacy Project",

abstract = "Background: Diabetes self-management education (DSME) is considered essential for improving the prevention and care of diabetes through empowering patients to increase agency in their own health and care processes. However, existing evidence regarding DSME in the EU Member States (EU MS) is insufficient to develop an EU-wide strategy.Objectives: This study presents the state of DSME in the 28 EU MS and contrasts it with 3 non-EU countries with comparable Human Development Index score: Israel, Taiwan, and the USA (ITU). Because type 2 diabetes mellitus (T2DM) disproportionately affects minority and low-income groups, we paid particular attention to health literacy aspects of DSME for vulnerable populations.Methods: Data from multiple stakeholders involved in diabetes care were collected from Feb 2014 to Jan 2015 using an online Diabetes Literacy Survey (DLS). Of the 379 respondents (249 from EU MS and 130 from ITU), most were people with diabetes (33% in the EU MS, 15% in ITU) and care providers (47% and 72%). These data were supplemented by an expert survey (ES) administered to 30 key informants.Results: Access to DSME varies greatly in the EU MS: an average of 29% (range 21% to 50%) of respondents report DSME programs are tailored for people with limited literacy, educational attainment, and language skills versus 63% in ITU. More than half of adult T2DM patients and children/adolescents participate in DSME in EU MS; in ITU, participation of T1DM patients and older people is lower. Prioritization of DSME (6.1 ± 2.8 out of 10) and the level of satisfaction with the current state of DSME (5.0 ± 2.4 out of 10) in the EU MS were comparable with ITU.Conclusion: Variation in availability and organization of DSME in the EU MS presents a clear rationale for developing an EU-wide diabetes strategy to improve treatment and care for people with diabetes.",

keywords = "Adolescent, Adult, Diabetes Mellitus/therapy, European Union, Health Literacy, Humans, Israel, Patient Education as Topic, Patient Participation, Self Care, Self-Management, Taiwan, United States",

author = "Henna Riemenschneider and Sarama Saha and {van den Broucke}, Stephan and Maindal, {Helle Terkildsen} and Gerardine Doyle and Diane Levin-Zamir and Ingrid Muller and Kristin Ganahl and Kristine S{\o}rensen and Peter Chang and Dean Schillinger and Schwarz, {Peter E.H.} and Gabriele M{\"u}ller",

year = "2018",

doi = "10.1155/2018/1467171",

language = "English",

volume = "2018",

pages = "1--11",

journal = "Journal of Diabetes Research",

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T1 - State of Diabetes Self-Management Education in the European Union Member States and Non-EU Countries

T2 - The Diabetes Literacy Project

AU - Riemenschneider, Henna

AU - Saha, Sarama

AU - van den Broucke, Stephan

AU - Maindal, Helle Terkildsen

AU - Doyle, Gerardine

AU - Levin-Zamir, Diane

AU - Muller, Ingrid

AU - Ganahl, Kristin

AU - Sørensen, Kristine

AU - Chang, Peter

AU - Schillinger, Dean

AU - Schwarz, Peter E.H.

AU - Müller, Gabriele

PY - 2018

Y1 - 2018

N2 - Background: Diabetes self-management education (DSME) is considered essential for improving the prevention and care of diabetes through empowering patients to increase agency in their own health and care processes. However, existing evidence regarding DSME in the EU Member States (EU MS) is insufficient to develop an EU-wide strategy.Objectives: This study presents the state of DSME in the 28 EU MS and contrasts it with 3 non-EU countries with comparable Human Development Index score: Israel, Taiwan, and the USA (ITU). Because type 2 diabetes mellitus (T2DM) disproportionately affects minority and low-income groups, we paid particular attention to health literacy aspects of DSME for vulnerable populations.Methods: Data from multiple stakeholders involved in diabetes care were collected from Feb 2014 to Jan 2015 using an online Diabetes Literacy Survey (DLS). Of the 379 respondents (249 from EU MS and 130 from ITU), most were people with diabetes (33% in the EU MS, 15% in ITU) and care providers (47% and 72%). These data were supplemented by an expert survey (ES) administered to 30 key informants.Results: Access to DSME varies greatly in the EU MS: an average of 29% (range 21% to 50%) of respondents report DSME programs are tailored for people with limited literacy, educational attainment, and language skills versus 63% in ITU. More than half of adult T2DM patients and children/adolescents participate in DSME in EU MS; in ITU, participation of T1DM patients and older people is lower. Prioritization of DSME (6.1 ± 2.8 out of 10) and the level of satisfaction with the current state of DSME (5.0 ± 2.4 out of 10) in the EU MS were comparable with ITU.Conclusion: Variation in availability and organization of DSME in the EU MS presents a clear rationale for developing an EU-wide diabetes strategy to improve treatment and care for people with diabetes.

AB - Background: Diabetes self-management education (DSME) is considered essential for improving the prevention and care of diabetes through empowering patients to increase agency in their own health and care processes. However, existing evidence regarding DSME in the EU Member States (EU MS) is insufficient to develop an EU-wide strategy.Objectives: This study presents the state of DSME in the 28 EU MS and contrasts it with 3 non-EU countries with comparable Human Development Index score: Israel, Taiwan, and the USA (ITU). Because type 2 diabetes mellitus (T2DM) disproportionately affects minority and low-income groups, we paid particular attention to health literacy aspects of DSME for vulnerable populations.Methods: Data from multiple stakeholders involved in diabetes care were collected from Feb 2014 to Jan 2015 using an online Diabetes Literacy Survey (DLS). Of the 379 respondents (249 from EU MS and 130 from ITU), most were people with diabetes (33% in the EU MS, 15% in ITU) and care providers (47% and 72%). These data were supplemented by an expert survey (ES) administered to 30 key informants.Results: Access to DSME varies greatly in the EU MS: an average of 29% (range 21% to 50%) of respondents report DSME programs are tailored for people with limited literacy, educational attainment, and language skills versus 63% in ITU. More than half of adult T2DM patients and children/adolescents participate in DSME in EU MS; in ITU, participation of T1DM patients and older people is lower. Prioritization of DSME (6.1 ± 2.8 out of 10) and the level of satisfaction with the current state of DSME (5.0 ± 2.4 out of 10) in the EU MS were comparable with ITU.Conclusion: Variation in availability and organization of DSME in the EU MS presents a clear rationale for developing an EU-wide diabetes strategy to improve treatment and care for people with diabetes.

KW - Adolescent

KW - Adult

KW - Diabetes Mellitus/therapy

KW - European Union

KW - Health Literacy

KW - Humans

KW - Israel

KW - Patient Education as Topic

KW - Patient Participation

KW - Self Care

KW - Self-Management

KW - Taiwan

KW - United States

U2 - 10.1155/2018/1467171

DO - 10.1155/2018/1467171

M3 - Journal article

C2 - 29850598

SN - 2314-6745

VL - 2018

SP - 1

EP - 11

JO - Journal of Diabetes Research

JF - Journal of Diabetes Research

M1 - 1467171

ER -

State of Diabetes Self-Management Education in the European Union Member States and Non-EU Countries: The Diabetes Literacy Project

Abstract

Keywords

UN SDGs

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