Protocol for evaluating and implementing a pragmatic value-based healthcare management model for patients with inflammatory arthritis: A Danish population-based regional cohort and qualitative implementation study

Tanja Schjødt Jørgensen; Jens Jørgen Lykkegaard; Annette Hansen; Heidi Morsø Schrøder; Betina Stampe; Anne Marie Tetsche Sweeney; Bente Appel Esbensen; Bianca Bech; Katja Christensen; Ellen Friis-Mikkelsen; Henrik Røgind; Tine Lundbak; Peter C. Taylor; Ingemar F. Petersson; Eva Ejlersen Wæhrens; Jakob Kjellberg; Henrik Gudbergsen; Lars Erik Kristensen

doi:10.1136/bmjopen-2018-023915

Protocol for evaluating and implementing a pragmatic value-based healthcare management model for patients with inflammatory arthritis: A Danish population-based regional cohort and qualitative implementation study

Tanja Schjødt Jørgensen^*, Jens Jørgen Lykkegaard, Annette Hansen, Heidi Morsø Schrøder, Betina Stampe, Anne Marie Tetsche Sweeney, Bente Appel Esbensen, Bianca Bech, Katja Christensen, Ellen Friis-Mikkelsen, Henrik Røgind, Tine Lundbak, Peter C. Taylor, Ingemar F. Petersson, Eva Ejlersen Wæhrens, Jakob Kjellberg, Henrik Gudbergsen, Lars Erik Kristensen

^*Corresponding author for this work

1 Citation (Scopus)

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Abstract

Introduction The provision of healthcare for patients with inflammatory arthritis occurs in the context of somewhat conflicting targets, values and drivers. Therefore, there is a need for introducing 'value-based healthcare' defined as the value of patient relevant health outcomes in relation to costs. This term is a central part of tomorrow's healthcare sector, especially for rheumatic diseases, yet the transition is a huge challenge, as it will impact the development, delivery and assessment of healthcare. Aims The aim of this study is to compare medical and patient evaluated impact of the traditional settlement and financing production (DAGS) controlled healthcare setting with a value-based and patient-centred adjunctive to standard care. Methods and analysis Patients with inflammatory arthritis receiving treatment in routine care at the outpatient clinics in the Capital Region of Denmark will prospectively and consecutively be enrolled in a Non-Intervention-Study framework providing a pragmatic value-based management model. A Danish reference cohort, used for comparison will be collected as part of routine clinical care. The enrolment period will be from 1 June 2018 until 31December 2023. Baseline and follow-up visits will be according to routine clinical care. Registry data will be obtained directly from patients and include personal, clinical and outcomes information. The study results will be reported in accordance with the STROBE statement. Ethics and dissemination The study has been notified to the Danish Data Protection Agency and granted authorisation for the period June 2018 to January 2025 (pending). Informed consent will be obtained from all patients before enrolment in the study. The study is approved by the ethics committee, Capital Region of Denmark (H-18013158). Results of the study will be disseminated through publication in international peer-reviewed journals.

Original language	English
Article number	e023915
Journal	BMJ Open
Volume	8
Issue number	10
Number of pages	9
ISSN	2044-6055
DOIs	https://doi.org/10.1136/bmjopen-2018-023915
Publication status	Published - 2018

Keywords

health care management model
inflammatory arthritis
patient centred value
value-based health care

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Jørgensen, T. S., Lykkegaard, J. J., Hansen, A., Schrøder, H. M., Stampe, B., Sweeney, A. M. T., Appel Esbensen, B., Bech, B., Christensen, K., Friis-Mikkelsen, E., Røgind, H., Lundbak, T., Taylor, P. C., Petersson, I. F., Wæhrens, E. E., Kjellberg, J., Gudbergsen, H., & Kristensen, L. E. (2018). Protocol for evaluating and implementing a pragmatic value-based healthcare management model for patients with inflammatory arthritis: A Danish population-based regional cohort and qualitative implementation study. BMJ Open, 8(10), [e023915]. https://doi.org/10.1136/bmjopen-2018-023915

Protocol for evaluating and implementing a pragmatic value-based healthcare management model for patients with inflammatory arthritis : A Danish population-based regional cohort and qualitative implementation study. / Jørgensen, Tanja Schjødt; Lykkegaard, Jens Jørgen; Hansen, Annette et al.

In: BMJ Open, Vol. 8, No. 10, e023915, 2018.

Research output: Contribution to journal › Journal article › Research › peer-review

Jørgensen, TS, Lykkegaard, JJ, Hansen, A, Schrøder, HM, Stampe, B, Sweeney, AMT, Appel Esbensen, B, Bech, B, Christensen, K, Friis-Mikkelsen, E, Røgind, H, Lundbak, T, Taylor, PC, Petersson, IF, Wæhrens, EE, Kjellberg, J, Gudbergsen, H & Kristensen, LE 2018, 'Protocol for evaluating and implementing a pragmatic value-based healthcare management model for patients with inflammatory arthritis: A Danish population-based regional cohort and qualitative implementation study', BMJ Open, vol. 8, no. 10, e023915. https://doi.org/10.1136/bmjopen-2018-023915

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abstract = "Introduction The provision of healthcare for patients with inflammatory arthritis occurs in the context of somewhat conflicting targets, values and drivers. Therefore, there is a need for introducing 'value-based healthcare' defined as the value of patient relevant health outcomes in relation to costs. This term is a central part of tomorrow's healthcare sector, especially for rheumatic diseases, yet the transition is a huge challenge, as it will impact the development, delivery and assessment of healthcare. Aims The aim of this study is to compare medical and patient evaluated impact of the traditional settlement and financing production (DAGS) controlled healthcare setting with a value-based and patient-centred adjunctive to standard care. Methods and analysis Patients with inflammatory arthritis receiving treatment in routine care at the outpatient clinics in the Capital Region of Denmark will prospectively and consecutively be enrolled in a Non-Intervention-Study framework providing a pragmatic value-based management model. A Danish reference cohort, used for comparison will be collected as part of routine clinical care. The enrolment period will be from 1 June 2018 until 31December 2023. Baseline and follow-up visits will be according to routine clinical care. Registry data will be obtained directly from patients and include personal, clinical and outcomes information. The study results will be reported in accordance with the STROBE statement. Ethics and dissemination The study has been notified to the Danish Data Protection Agency and granted authorisation for the period June 2018 to January 2025 (pending). Informed consent will be obtained from all patients before enrolment in the study. The study is approved by the ethics committee, Capital Region of Denmark (H-18013158). Results of the study will be disseminated through publication in international peer-reviewed journals.",

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T1 - Protocol for evaluating and implementing a pragmatic value-based healthcare management model for patients with inflammatory arthritis

T2 - A Danish population-based regional cohort and qualitative implementation study

AU - Jørgensen, Tanja Schjødt

AU - Lykkegaard, Jens Jørgen

AU - Hansen, Annette

AU - Schrøder, Heidi Morsø

AU - Stampe, Betina

AU - Sweeney, Anne Marie Tetsche

AU - Appel Esbensen, Bente

AU - Bech, Bianca

AU - Christensen, Katja

AU - Friis-Mikkelsen, Ellen

AU - Røgind, Henrik

AU - Lundbak, Tine

AU - Taylor, Peter C.

AU - Petersson, Ingemar F.

AU - Wæhrens, Eva Ejlersen

AU - Kjellberg, Jakob

AU - Gudbergsen, Henrik

AU - Kristensen, Lars Erik

PY - 2018

Y1 - 2018

N2 - Introduction The provision of healthcare for patients with inflammatory arthritis occurs in the context of somewhat conflicting targets, values and drivers. Therefore, there is a need for introducing 'value-based healthcare' defined as the value of patient relevant health outcomes in relation to costs. This term is a central part of tomorrow's healthcare sector, especially for rheumatic diseases, yet the transition is a huge challenge, as it will impact the development, delivery and assessment of healthcare. Aims The aim of this study is to compare medical and patient evaluated impact of the traditional settlement and financing production (DAGS) controlled healthcare setting with a value-based and patient-centred adjunctive to standard care. Methods and analysis Patients with inflammatory arthritis receiving treatment in routine care at the outpatient clinics in the Capital Region of Denmark will prospectively and consecutively be enrolled in a Non-Intervention-Study framework providing a pragmatic value-based management model. A Danish reference cohort, used for comparison will be collected as part of routine clinical care. The enrolment period will be from 1 June 2018 until 31December 2023. Baseline and follow-up visits will be according to routine clinical care. Registry data will be obtained directly from patients and include personal, clinical and outcomes information. The study results will be reported in accordance with the STROBE statement. Ethics and dissemination The study has been notified to the Danish Data Protection Agency and granted authorisation for the period June 2018 to January 2025 (pending). Informed consent will be obtained from all patients before enrolment in the study. The study is approved by the ethics committee, Capital Region of Denmark (H-18013158). Results of the study will be disseminated through publication in international peer-reviewed journals.

AB - Introduction The provision of healthcare for patients with inflammatory arthritis occurs in the context of somewhat conflicting targets, values and drivers. Therefore, there is a need for introducing 'value-based healthcare' defined as the value of patient relevant health outcomes in relation to costs. This term is a central part of tomorrow's healthcare sector, especially for rheumatic diseases, yet the transition is a huge challenge, as it will impact the development, delivery and assessment of healthcare. Aims The aim of this study is to compare medical and patient evaluated impact of the traditional settlement and financing production (DAGS) controlled healthcare setting with a value-based and patient-centred adjunctive to standard care. Methods and analysis Patients with inflammatory arthritis receiving treatment in routine care at the outpatient clinics in the Capital Region of Denmark will prospectively and consecutively be enrolled in a Non-Intervention-Study framework providing a pragmatic value-based management model. A Danish reference cohort, used for comparison will be collected as part of routine clinical care. The enrolment period will be from 1 June 2018 until 31December 2023. Baseline and follow-up visits will be according to routine clinical care. Registry data will be obtained directly from patients and include personal, clinical and outcomes information. The study results will be reported in accordance with the STROBE statement. Ethics and dissemination The study has been notified to the Danish Data Protection Agency and granted authorisation for the period June 2018 to January 2025 (pending). Informed consent will be obtained from all patients before enrolment in the study. The study is approved by the ethics committee, Capital Region of Denmark (H-18013158). Results of the study will be disseminated through publication in international peer-reviewed journals.

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