Property and Human Genetic Information

TY - JOUR

T1 - Property and Human Genetic Information

AU - Nielsen, Morten Ebbe Juul

AU - Kongsholm, Nana Cecilie Halmsted

AU - Schovsbo, Jens Hemmingsen

PY - 2019/1/30

Y1 - 2019/1/30

N2 - Do donors (of samples from which genetic information is derived) have some sort of pre-legal (moral) or legal property right to that information? In this paper, we address this question from both a moral philosophical and a legal point of view. We argue that philosophical theories about property do not seem to support a positive answer: We have not mixed our labour with our genes, and the human genome cannot be said to be a fitting object for private ownership based on some idea of self-ownership. An analysis of the term ‘property’ as seen from a legal perspective yields the conclusion that property is, at best, a linguistic prop whose real content has to be defined at least partially conventionally. Relevant interests that may be seen to be protected seem to be interests of privacy or interests against exploitation. To the extent that the logic behind the patent system holds true limiting incentives decreases innovation in society. A balancing of interest must take place, and we have to make sure that patent protection serves general societal interests and not just those of special interest groups be that inventors or donors.

AB - Do donors (of samples from which genetic information is derived) have some sort of pre-legal (moral) or legal property right to that information? In this paper, we address this question from both a moral philosophical and a legal point of view. We argue that philosophical theories about property do not seem to support a positive answer: We have not mixed our labour with our genes, and the human genome cannot be said to be a fitting object for private ownership based on some idea of self-ownership. An analysis of the term ‘property’ as seen from a legal perspective yields the conclusion that property is, at best, a linguistic prop whose real content has to be defined at least partially conventionally. Relevant interests that may be seen to be protected seem to be interests of privacy or interests against exploitation. To the extent that the logic behind the patent system holds true limiting incentives decreases innovation in society. A balancing of interest must take place, and we have to make sure that patent protection serves general societal interests and not just those of special interest groups be that inventors or donors.

U2 - 10.1007/s12687-018-0366-4

DO - 10.1007/s12687-018-0366-4

M3 - Journal article

C2 - 29713893

SN - 1868-310X

VL - 10

SP - 95

EP - 107

JO - Journal of Community Genetics

JF - Journal of Community Genetics

IS - 1

ER -