Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1

Florian Halbeisen; Claire Hogg; Mikkel C. Alanin; Zuzanna Bukowy-Bieryllo; Francisco Dasi; Julie Duncan; Amanda Friend; Myrofora Goutaki; Claire Jackson; Victoria Keenan; Amanda Harris; Robert A. Hirst; Philipp Latzin; Gemma Marsh; Kim Nielsen; Dominic Norris; Daniel Pellicer; Ana Reula; Bruna Rubbo; Nisreen Rumman; Amelia Shoemark; Woolf T. Walker; Claudia E. Kuehni; Jane S. Lucas

doi:10.1186/s12919-018-0098-9

Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1

Florian Halbeisen, Claire Hogg, Mikkel C. Alanin, Zuzanna Bukowy-Bieryllo, Francisco Dasi, Julie Duncan, Amanda Friend, Myrofora Goutaki, Claire Jackson, Victoria Keenan, Amanda Harris, Robert A. Hirst, Philipp Latzin, Gemma Marsh, Kim Nielsen, Dominic Norris, Daniel Pellicer, Ana Reula, Bruna Rubbo, Nisreen RummanAmelia Shoemark, Woolf T. Walker, Claudia E. Kuehni, Jane S. Lucas^*

^*Corresponding author for this work

Department of Clinical Medicine

5 Citations (Scopus)

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Abstract

Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

Original language	English
Article number	1
Journal	B M C Proceedings
Volume	12
Issue number	Suppl. 2
Number of pages	17
ISSN	1753-6561
DOIs	https://doi.org/10.1186/s12919-018-0098-9
Publication status	Published - 2018
Event	2nd BEAT-PCD Conference - Valencia, Spain Duration: 18 Apr 2017 → 21 Apr 2017

Conference

Conference	2nd BEAT-PCD Conference
Country/Territory	Spain
City	Valencia
Period	18/04/2017 → 21/04/2017

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Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training schoolFinal published version, 1.03 MBLicence: CC BY

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Halbeisen, F., Hogg, C., Alanin, M. C., Bukowy-Bieryllo, Z., Dasi, F., Duncan, J., Friend, A., Goutaki, M., Jackson, C., Keenan, V., Harris, A., Hirst, R. A., Latzin, P., Marsh, G., Nielsen, K., Norris, D., Pellicer, D., Reula, A., Rubbo, B., ... Lucas, J. S. (2018). Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1. B M C Proceedings, 12(Suppl. 2), Article 1. https://doi.org/10.1186/s12919-018-0098-9

Halbeisen, F, Hogg, C, Alanin, MC, Bukowy-Bieryllo, Z, Dasi, F, Duncan, J, Friend, A, Goutaki, M, Jackson, C, Keenan, V, Harris, A, Hirst, RA, Latzin, P, Marsh, G, Nielsen, K, Norris, D, Pellicer, D, Reula, A, Rubbo, B, Rumman, N, Shoemark, A, Walker, WT, Kuehni, CE & Lucas, JS 2018, 'Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1', B M C Proceedings, vol. 12, no. Suppl. 2, 1. https://doi.org/10.1186/s12919-018-0098-9

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title = "Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1",

abstract = "Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.",

author = "Florian Halbeisen and Claire Hogg and Alanin, {Mikkel C.} and Zuzanna Bukowy-Bieryllo and Francisco Dasi and Julie Duncan and Amanda Friend and Myrofora Goutaki and Claire Jackson and Victoria Keenan and Amanda Harris and Hirst, {Robert A.} and Philipp Latzin and Gemma Marsh and Kim Nielsen and Dominic Norris and Daniel Pellicer and Ana Reula and Bruna Rubbo and Nisreen Rumman and Amelia Shoemark and Walker, {Woolf T.} and Kuehni, {Claudia E.} and Lucas, {Jane S.}",

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AU - Halbeisen, Florian

AU - Hogg, Claire

AU - Alanin, Mikkel C.

AU - Bukowy-Bieryllo, Zuzanna

AU - Dasi, Francisco

AU - Duncan, Julie

AU - Friend, Amanda

AU - Goutaki, Myrofora

AU - Jackson, Claire

AU - Keenan, Victoria

AU - Harris, Amanda

AU - Hirst, Robert A.

AU - Latzin, Philipp

AU - Marsh, Gemma

AU - Nielsen, Kim

AU - Norris, Dominic

AU - Pellicer, Daniel

AU - Reula, Ana

AU - Rubbo, Bruna

AU - Rumman, Nisreen

AU - Shoemark, Amelia

AU - Walker, Woolf T.

AU - Kuehni, Claudia E.

AU - Lucas, Jane S.

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N2 - Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

AB - Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

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Y2 - 18 April 2017 through 21 April 2017

ER -

Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1

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