Multidisciplinary Management of Mastocytosis: Nordic Expert Group Consensus

Sigurd Broesby-Olsen; Ingunn Dybedal; Theo Gülen; Thomas Kristensen; Michael B Møller; Leena Ackermann; Maria Sääf; Maria A Karlsson; Lone Agertoft; Kim Brixen; Pernille Hermann; Eva Stylianou; Charlotte G Mortz; Trine Torfing; Troels Havelund; Birgitta Sander; Anna Bergström; Marie Bendix; Lene H Garvey; Ole Weis Bjerrum; Peter Valent; Carsten Bindslev-Jensen; Gunnar Nilsson; Hanne Vestergaard; Hans Hägglund

doi:10.2340/00015555-2325

Multidisciplinary Management of Mastocytosis: Nordic Expert Group Consensus

Sigurd Broesby-Olsen, Ingunn Dybedal, Theo Gülen, Thomas Kristensen, Michael B Møller, Leena Ackermann, Maria Sääf, Maria A Karlsson, Lone Agertoft, Kim Brixen, Pernille Hermann, Eva Stylianou, Charlotte G Mortz, Trine Torfing, Troels Havelund, Birgitta Sander, Anna Bergström, Marie Bendix, Lene H Garvey, Ole Weis BjerrumPeter Valent, Carsten Bindslev-Jensen, Gunnar Nilsson, Hanne Vestergaard, Hans Hägglund

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Abstract

Mastocytosis is a heterogeneous group of diseases defined by an increased number and accumulation of mast cells, and often also by signs and symptoms of mast cell activation. Disease subtypes range from indolent to rare aggressive forms. Mastocytosis affects people of all ages and has been considered rare; however, it is probably underdiagnosed with potential severe implications. Diagnosis can be challenging and symptoms may be complex and involve multiple organ-systems. In general it is advised that patients should be referred to centres with experience in the disease offering an individualized, multidisciplinary approach. We present here consensus recommendations from a Nordic expert group for the diagnosis and general management of patients with mastocytosis.

Original language	English
Journal	Acta Dermatovenereologica
Volume	96
Issue number	5
Pages (from-to)	602-612
Number of pages	11
ISSN	0001-5555
DOIs	https://doi.org/10.2340/00015555-2325
Publication status	Published - 15 Jun 2016

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Broesby-Olsen, S., Dybedal, I., Gülen, T., Kristensen, T., Møller, M. B., Ackermann, L., Sääf, M., Karlsson, M. A., Agertoft, L., Brixen, K., Hermann, P., Stylianou, E., Mortz, C. G., Torfing, T., Havelund, T., Sander, B., Bergström, A., Bendix, M., Garvey, L. H., ... Hägglund, H. (2016). Multidisciplinary Management of Mastocytosis: Nordic Expert Group Consensus. Acta Dermatovenereologica, 96(5), 602-612. https://doi.org/10.2340/00015555-2325

Broesby-Olsen, S, Dybedal, I, Gülen, T, Kristensen, T, Møller, MB, Ackermann, L, Sääf, M, Karlsson, MA, Agertoft, L, Brixen, K, Hermann, P, Stylianou, E, Mortz, CG, Torfing, T, Havelund, T, Sander, B, Bergström, A, Bendix, M, Garvey, LH, Bjerrum, OW, Valent, P, Bindslev-Jensen, C, Nilsson, G, Vestergaard, H & Hägglund, H 2016, 'Multidisciplinary Management of Mastocytosis: Nordic Expert Group Consensus', Acta Dermatovenereologica, vol. 96, no. 5, pp. 602-612. https://doi.org/10.2340/00015555-2325

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title = "Multidisciplinary Management of Mastocytosis: Nordic Expert Group Consensus",

abstract = "Mastocytosis is a heterogeneous group of diseases defined by an increased number and accumulation of mast cells, and often also by signs and symptoms of mast cell activation. Disease subtypes range from indolent to rare aggressive forms. Mastocytosis affects people of all ages and has been considered rare; however, it is probably underdiagnosed with potential severe implications. Diagnosis can be challenging and symptoms may be complex and involve multiple organ-systems. In general it is advised that patients should be referred to centres with experience in the disease offering an individualized, multidisciplinary approach. We present here consensus recommendations from a Nordic expert group for the diagnosis and general management of patients with mastocytosis.",

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doi = "10.2340/00015555-2325",

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T1 - Multidisciplinary Management of Mastocytosis

T2 - Nordic Expert Group Consensus

AU - Broesby-Olsen, Sigurd

AU - Dybedal, Ingunn

AU - Gülen, Theo

AU - Kristensen, Thomas

AU - Møller, Michael B

AU - Ackermann, Leena

AU - Sääf, Maria

AU - Karlsson, Maria A

AU - Agertoft, Lone

AU - Brixen, Kim

AU - Hermann, Pernille

AU - Stylianou, Eva

AU - Mortz, Charlotte G

AU - Torfing, Trine

AU - Havelund, Troels

AU - Sander, Birgitta

AU - Bergström, Anna

AU - Bendix, Marie

AU - Garvey, Lene H

AU - Bjerrum, Ole Weis

AU - Valent, Peter

AU - Bindslev-Jensen, Carsten

AU - Nilsson, Gunnar

AU - Vestergaard, Hanne

AU - Hägglund, Hans

PY - 2016/6/15

Y1 - 2016/6/15

N2 - Mastocytosis is a heterogeneous group of diseases defined by an increased number and accumulation of mast cells, and often also by signs and symptoms of mast cell activation. Disease subtypes range from indolent to rare aggressive forms. Mastocytosis affects people of all ages and has been considered rare; however, it is probably underdiagnosed with potential severe implications. Diagnosis can be challenging and symptoms may be complex and involve multiple organ-systems. In general it is advised that patients should be referred to centres with experience in the disease offering an individualized, multidisciplinary approach. We present here consensus recommendations from a Nordic expert group for the diagnosis and general management of patients with mastocytosis.

AB - Mastocytosis is a heterogeneous group of diseases defined by an increased number and accumulation of mast cells, and often also by signs and symptoms of mast cell activation. Disease subtypes range from indolent to rare aggressive forms. Mastocytosis affects people of all ages and has been considered rare; however, it is probably underdiagnosed with potential severe implications. Diagnosis can be challenging and symptoms may be complex and involve multiple organ-systems. In general it is advised that patients should be referred to centres with experience in the disease offering an individualized, multidisciplinary approach. We present here consensus recommendations from a Nordic expert group for the diagnosis and general management of patients with mastocytosis.

U2 - 10.2340/00015555-2325

DO - 10.2340/00015555-2325

M3 - Journal article

C2 - 26694951

SN - 0001-5555

VL - 96

SP - 602

EP - 612

JO - Acta Dermato-Venereologica

JF - Acta Dermato-Venereologica

IS - 5

ER -

Multidisciplinary Management of Mastocytosis: Nordic Expert Group Consensus

Abstract

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