Interpreting, negotiating, and engaging in health data on sundhed.dk

Martina Skrubbeltrang Mahnke; Mikka Nielsen

Interpreting, negotiating, and engaging in health data on sundhed.dk

Martina Skrubbeltrang Mahnke, Mikka Nielsen

Abstract

Sundhed.dk is the Danish eHealth portal providing access to healthcare services as well as patients’ own health care records. The purpose of the portal is to create full transparency, so citizens can become well-informed and qualified partners in the public health care system. Based on an on-going interview study, this paper examines patients’ use of and engagement with data available on the platform. It asks how access to data affects the patient’s understanding of his or her disorder and discusses further the implications for the patient’s involvement in treatment and therapeutic processes. The preliminary analysis suggests that access to numeric measurements increasespatients’ experiences of control over treatment plans. However, when it comes to qualitative descriptions made by the doctor about the patient, the opposite is the case.These tend to foster insecurity on the patients’ side. Another crucial point is the time and space of data access. As the platform is always available, the space and time when the patient meets his or her data is re-negotiated. Therefore, understanding and having a sense of ownership of one’s data is not only a matter of the data itself but also a question of where it is accessed and if the patient engages in (and is able to engage in) the opportunity of discussing the data with health professionals. Thus, the paper argues that access to health data on sundhed.dk produces new practices as well as new spaces of interpreting, negotiating, and engaging in health.

Original language	English
Publication date	2019
Publication status	Published - 2019
Event	The Digitally Engaged Patient - University of Copenhagen, Copenhagen, Denmark Duration: 11 Jun 2019 → 12 Jun 2019 https://eventsignup.ku.dk/VITAL-DEPConference/call-for-abstracts.html

Conference

Conference	The Digitally Engaged Patient
Location	University of Copenhagen
Country/Territory	Denmark
City	Copenhagen
Period	11/06/2019 → 12/06/2019
Internet address	https://eventsignup.ku.dk/VITAL-DEPConference/call-for-abstracts.html

Cite this

@conference{52a6cfd1398d4d8caf1cfa3b9233f0e6,

title = "Interpreting, negotiating, and engaging in health data on sundhed.dk",

abstract = "Sundhed.dk is the Danish eHealth portal providing access to healthcare services as well as patients{\textquoteright} own health care records. The purpose of the portal is to create full transparency, so citizens can become well-informed and qualified partners in the public health care system. Based on an on-going interview study, this paper examines patients{\textquoteright} use of and engagement with data available on the platform. It asks how access to data affects the patient{\textquoteright}s understanding of his or her disorder and discusses further the implications for the patient{\textquoteright}s involvement in treatment and therapeutic processes. The preliminary analysis suggests that access to numeric measurements increasespatients{\textquoteright} experiences of control over treatment plans. However, when it comes to qualitative descriptions made by the doctor about the patient, the opposite is the case.These tend to foster insecurity on the patients{\textquoteright} side. Another crucial point is the time and space of data access. As the platform is always available, the space and time when the patient meets his or her data is re-negotiated. Therefore, understanding and having a sense of ownership of one{\textquoteright}s data is not only a matter of the data itself but also a question of where it is accessed and if the patient engages in (and is able to engage in) the opportunity of discussing the data with health professionals. Thus, the paper argues that access to health data on sundhed.dk produces new practices as well as new spaces of interpreting, negotiating, and engaging in health.",

author = "Mahnke, {Martina Skrubbeltrang} and Mikka Nielsen",

year = "2019",

language = "English",

note = "The Digitally Engaged Patient ; Conference date: 11-06-2019 Through 12-06-2019",

url = "https://eventsignup.ku.dk/VITAL-DEPConference/call-for-abstracts.html",

}

TY - ABST

T1 - Interpreting, negotiating, and engaging in health data on sundhed.dk

AU - Mahnke, Martina Skrubbeltrang

AU - Nielsen, Mikka

PY - 2019

Y1 - 2019

N2 - Sundhed.dk is the Danish eHealth portal providing access to healthcare services as well as patients’ own health care records. The purpose of the portal is to create full transparency, so citizens can become well-informed and qualified partners in the public health care system. Based on an on-going interview study, this paper examines patients’ use of and engagement with data available on the platform. It asks how access to data affects the patient’s understanding of his or her disorder and discusses further the implications for the patient’s involvement in treatment and therapeutic processes. The preliminary analysis suggests that access to numeric measurements increasespatients’ experiences of control over treatment plans. However, when it comes to qualitative descriptions made by the doctor about the patient, the opposite is the case.These tend to foster insecurity on the patients’ side. Another crucial point is the time and space of data access. As the platform is always available, the space and time when the patient meets his or her data is re-negotiated. Therefore, understanding and having a sense of ownership of one’s data is not only a matter of the data itself but also a question of where it is accessed and if the patient engages in (and is able to engage in) the opportunity of discussing the data with health professionals. Thus, the paper argues that access to health data on sundhed.dk produces new practices as well as new spaces of interpreting, negotiating, and engaging in health.

AB - Sundhed.dk is the Danish eHealth portal providing access to healthcare services as well as patients’ own health care records. The purpose of the portal is to create full transparency, so citizens can become well-informed and qualified partners in the public health care system. Based on an on-going interview study, this paper examines patients’ use of and engagement with data available on the platform. It asks how access to data affects the patient’s understanding of his or her disorder and discusses further the implications for the patient’s involvement in treatment and therapeutic processes. The preliminary analysis suggests that access to numeric measurements increasespatients’ experiences of control over treatment plans. However, when it comes to qualitative descriptions made by the doctor about the patient, the opposite is the case.These tend to foster insecurity on the patients’ side. Another crucial point is the time and space of data access. As the platform is always available, the space and time when the patient meets his or her data is re-negotiated. Therefore, understanding and having a sense of ownership of one’s data is not only a matter of the data itself but also a question of where it is accessed and if the patient engages in (and is able to engage in) the opportunity of discussing the data with health professionals. Thus, the paper argues that access to health data on sundhed.dk produces new practices as well as new spaces of interpreting, negotiating, and engaging in health.

M3 - Conference abstract for conference

T2 - The Digitally Engaged Patient

Y2 - 11 June 2019 through 12 June 2019

ER -