International multi-site survey on the use of online support groups in bipolar disorder

Rita Bauer; Jörn Conell; Tasha Glenn; Martin Alda; Raffaella Ardau; Bernhard T Baune; Michael Berk; Yuly Bersudsky; Amy Bilderbeck; Alberto Bocchetta; Letizia Bossini; Angela M Paredes Castro; Eric Y W Cheung; Caterina Chillotti; Sabine Choppin; Maria Del Zompo; Rodrigo Dias; Seetal Dodd; Anne Duffy; Bruno Etain; Andrea Fagiolini; Miryam Fernández Hernandez; Julie Garnham; John Geddes; Jonas Gildebro; Ana Gonzalez-Pinto; Guy M Goodwin; Paul Grof; Hirohiko Harima; Stefanie Hassel; Chantal Henry; Diego Hidalgo-Mazzei; Vaisnvy Kapur; Girish Kunigiri; Beny Lafer; Erik R Larsen; Ute Lewitzka; Rasmus W Licht; Anne Hvenegaard Lund; Blazej Misiak; Patryk Piotrowski; Scott Monteith; Rodrigo Munoz; Takako Nakanotani; René E Nielsen; Claire O'donovan; Yasushi Okamura; Yamima Osher; Andreas Reif; Philipp Ritter; Janusz K Rybakowski; Kemal Sagduyu; Brett Sawchuk; Elon Schwartz; Ângela M Scippa; Claire Slaney; Ahmad H Sulaiman; Kirsi Suominen; Aleksandra Suwalska; Peter Tam; Yoshitaka Tatebayashi; Leonardo Tondo; Eduard Vieta; Maj Vinberg; Biju Viswanath; Julia Volkert; Mark Zetin; Peter C Whybrow; Michael Bauer

doi:10.1080/08039488.2017.1334819

International multi-site survey on the use of online support groups in bipolar disorder

Rita Bauer, Jörn Conell, Tasha Glenn, Martin Alda, Raffaella Ardau, Bernhard T Baune, Michael Berk, Yuly Bersudsky, Amy Bilderbeck, Alberto Bocchetta, Letizia Bossini, Angela M Paredes Castro, Eric Y W Cheung, Caterina Chillotti, Sabine Choppin, Maria Del Zompo, Rodrigo Dias, Seetal Dodd, Anne Duffy, Bruno EtainAndrea Fagiolini, Miryam Fernández Hernandez, Julie Garnham, John Geddes, Jonas Gildebro, Ana Gonzalez-Pinto, Guy M Goodwin, Paul Grof, Hirohiko Harima, Stefanie Hassel, Chantal Henry, Diego Hidalgo-Mazzei, Vaisnvy Kapur, Girish Kunigiri, Beny Lafer, Erik R Larsen, Ute Lewitzka, Rasmus W Licht, Anne Hvenegaard Lund, Blazej Misiak, Patryk Piotrowski, Scott Monteith, Rodrigo Munoz, Takako Nakanotani, René E Nielsen, Claire O'donovan, Yasushi Okamura, Yamima Osher, Andreas Reif, Philipp Ritter, Janusz K Rybakowski, Kemal Sagduyu, Brett Sawchuk, Elon Schwartz, Ângela M Scippa, Claire Slaney, Ahmad H Sulaiman, Kirsi Suominen, Aleksandra Suwalska, Peter Tam, Yoshitaka Tatebayashi, Leonardo Tondo, Eduard Vieta, Maj Vinberg, Biju Viswanath, Julia Volkert, Mark Zetin, Peter C Whybrow, Michael Bauer

Department of Clinical Medicine

2 Citations (Scopus)

Abstract

BACKGROUND: Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient's convenience. Prior research in bipolar disorder has reported value from online support groups.

AIMS: To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking.

METHODS: The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data.

RESULTS AND CONCLUSIONS: The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0% read or participated in support groups, chats, or forums for bipolar disorder (12.8% of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.

Original language	English
Journal	Nordic Journal of Psychiatry
Volume	71
Issue number	6
Pages (from-to)	473-476
ISSN	0803-9488
DOIs	https://doi.org/10.1080/08039488.2017.1334819
Publication status	Published - 18 Aug 2017

Keywords

Adult
Bipolar Disorder/epidemiology
Female
Humans
Internationality
Internet/utilization
Male
Middle Aged
Self-Help Groups/utilization
Surveys and Questionnaires

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10.1080/08039488.2017.1334819

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Bauer, R., Conell, J., Glenn, T., Alda, M., Ardau, R., Baune, B. T., Berk, M., Bersudsky, Y., Bilderbeck, A., Bocchetta, A., Bossini, L., Castro, A. M. P., Cheung, E. Y. W., Chillotti, C., Choppin, S., Zompo, M. D., Dias, R., Dodd, S., Duffy, A., ... Bauer, M. (2017). International multi-site survey on the use of online support groups in bipolar disorder. Nordic Journal of Psychiatry, 71(6), 473-476. https://doi.org/10.1080/08039488.2017.1334819

Bauer, R, Conell, J, Glenn, T, Alda, M, Ardau, R, Baune, BT, Berk, M, Bersudsky, Y, Bilderbeck, A, Bocchetta, A, Bossini, L, Castro, AMP, Cheung, EYW, Chillotti, C, Choppin, S, Zompo, MD, Dias, R, Dodd, S, Duffy, A, Etain, B, Fagiolini, A, Hernandez, MF, Garnham, J, Geddes, J, Gildebro, J, Gonzalez-Pinto, A, Goodwin, GM, Grof, P, Harima, H, Hassel, S, Henry, C, Hidalgo-Mazzei, D, Kapur, V, Kunigiri, G, Lafer, B, Larsen, ER, Lewitzka, U, Licht, RW, Hvenegaard Lund, A, Misiak, B, Piotrowski, P, Monteith, S, Munoz, R, Nakanotani, T, Nielsen, RE, O'donovan, C, Okamura, Y, Osher, Y, Reif, A, Ritter, P, Rybakowski, JK, Sagduyu, K, Sawchuk, B, Schwartz, E, Scippa, ÂM, Slaney, C, Sulaiman, AH, Suominen, K, Suwalska, A, Tam, P, Tatebayashi, Y, Tondo, L, Vieta, E, Vinberg, M, Viswanath, B, Volkert, J, Zetin, M, Whybrow, PC & Bauer, M 2017, 'International multi-site survey on the use of online support groups in bipolar disorder', Nordic Journal of Psychiatry, vol. 71, no. 6, pp. 473-476. https://doi.org/10.1080/08039488.2017.1334819

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title = "International multi-site survey on the use of online support groups in bipolar disorder",

abstract = "BACKGROUND: Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient's convenience. Prior research in bipolar disorder has reported value from online support groups.AIMS: To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking.METHODS: The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data.RESULTS AND CONCLUSIONS: The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0% read or participated in support groups, chats, or forums for bipolar disorder (12.8% of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.",

keywords = "Adult, Bipolar Disorder/epidemiology, Female, Humans, Internationality, Internet/utilization, Male, Middle Aged, Self-Help Groups/utilization, Surveys and Questionnaires",

author = "Rita Bauer and J{\"o}rn Conell and Tasha Glenn and Martin Alda and Raffaella Ardau and Baune, {Bernhard T} and Michael Berk and Yuly Bersudsky and Amy Bilderbeck and Alberto Bocchetta and Letizia Bossini and Castro, {Angela M Paredes} and Cheung, {Eric Y W} and Caterina Chillotti and Sabine Choppin and Zompo, {Maria Del} and Rodrigo Dias and Seetal Dodd and Anne Duffy and Bruno Etain and Andrea Fagiolini and Hernandez, {Miryam Fern{\'a}ndez} and Julie Garnham and John Geddes and Jonas Gildebro and Ana Gonzalez-Pinto and Goodwin, {Guy M} and Paul Grof and Hirohiko Harima and Stefanie Hassel and Chantal Henry and Diego Hidalgo-Mazzei and Vaisnvy Kapur and Girish Kunigiri and Beny Lafer and Larsen, {Erik R} and Ute Lewitzka and Licht, {Rasmus W} and {Hvenegaard Lund}, Anne and Blazej Misiak and Patryk Piotrowski and Scott Monteith and Rodrigo Munoz and Takako Nakanotani and Nielsen, {Ren{\'e} E} and Claire O'donovan and Yasushi Okamura and Yamima Osher and Andreas Reif and Philipp Ritter and Rybakowski, {Janusz K} and Kemal Sagduyu and Brett Sawchuk and Elon Schwartz and Scippa, {{\^A}ngela M} and Claire Slaney and Sulaiman, {Ahmad H} and Kirsi Suominen and Aleksandra Suwalska and Peter Tam and Yoshitaka Tatebayashi and Leonardo Tondo and Eduard Vieta and Maj Vinberg and Biju Viswanath and Julia Volkert and Mark Zetin and Whybrow, {Peter C} and Michael Bauer",

year = "2017",

month = aug,

day = "18",

doi = "10.1080/08039488.2017.1334819",

language = "English",

volume = "71",

pages = "473--476",

journal = "Nordisk Psykiatrisk Tidsskrift",

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T1 - International multi-site survey on the use of online support groups in bipolar disorder

AU - Bauer, Rita

AU - Conell, Jörn

AU - Glenn, Tasha

AU - Alda, Martin

AU - Ardau, Raffaella

AU - Baune, Bernhard T

AU - Berk, Michael

AU - Bersudsky, Yuly

AU - Bilderbeck, Amy

AU - Bocchetta, Alberto

AU - Bossini, Letizia

AU - Castro, Angela M Paredes

AU - Cheung, Eric Y W

AU - Chillotti, Caterina

AU - Choppin, Sabine

AU - Zompo, Maria Del

AU - Dias, Rodrigo

AU - Dodd, Seetal

AU - Duffy, Anne

AU - Etain, Bruno

AU - Fagiolini, Andrea

AU - Hernandez, Miryam Fernández

AU - Garnham, Julie

AU - Geddes, John

AU - Gildebro, Jonas

AU - Gonzalez-Pinto, Ana

AU - Goodwin, Guy M

AU - Grof, Paul

AU - Harima, Hirohiko

AU - Hassel, Stefanie

AU - Henry, Chantal

AU - Hidalgo-Mazzei, Diego

AU - Kapur, Vaisnvy

AU - Kunigiri, Girish

AU - Lafer, Beny

AU - Larsen, Erik R

AU - Lewitzka, Ute

AU - Licht, Rasmus W

AU - Hvenegaard Lund, Anne

AU - Misiak, Blazej

AU - Piotrowski, Patryk

AU - Monteith, Scott

AU - Munoz, Rodrigo

AU - Nakanotani, Takako

AU - Nielsen, René E

AU - O'donovan, Claire

AU - Okamura, Yasushi

AU - Osher, Yamima

AU - Reif, Andreas

AU - Ritter, Philipp

AU - Rybakowski, Janusz K

AU - Sagduyu, Kemal

AU - Sawchuk, Brett

AU - Schwartz, Elon

AU - Scippa, Ângela M

AU - Slaney, Claire

AU - Sulaiman, Ahmad H

AU - Suominen, Kirsi

AU - Suwalska, Aleksandra

AU - Tam, Peter

AU - Tatebayashi, Yoshitaka

AU - Tondo, Leonardo

AU - Vieta, Eduard

AU - Vinberg, Maj

AU - Viswanath, Biju

AU - Volkert, Julia

AU - Zetin, Mark

AU - Whybrow, Peter C

AU - Bauer, Michael

PY - 2017/8/18

Y1 - 2017/8/18

N2 - BACKGROUND: Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient's convenience. Prior research in bipolar disorder has reported value from online support groups.AIMS: To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking.METHODS: The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data.RESULTS AND CONCLUSIONS: The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0% read or participated in support groups, chats, or forums for bipolar disorder (12.8% of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.

AB - BACKGROUND: Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient's convenience. Prior research in bipolar disorder has reported value from online support groups.AIMS: To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking.METHODS: The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data.RESULTS AND CONCLUSIONS: The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0% read or participated in support groups, chats, or forums for bipolar disorder (12.8% of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.

KW - Adult

KW - Bipolar Disorder/epidemiology

KW - Female

KW - Humans

KW - Internationality

KW - Internet/utilization

KW - Male

KW - Middle Aged

KW - Self-Help Groups/utilization

KW - Surveys and Questionnaires

U2 - 10.1080/08039488.2017.1334819

DO - 10.1080/08039488.2017.1334819

M3 - Journal article

C2 - 28696841

SN - 0803-9496

VL - 71

SP - 473

EP - 476

JO - Nordisk Psykiatrisk Tidsskrift

JF - Nordisk Psykiatrisk Tidsskrift

IS - 6

ER -

International multi-site survey on the use of online support groups in bipolar disorder

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Keywords

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