EURObservational Research Programme: regional differences and 1-year follow-up results of the Heart Failure Pilot Survey (ESC-HF Pilot)

Aldo P Maggioni; Ulf Dahlström; Gerasimos Filippatos; Ovidiu Chioncel; Marisa Crespo Leiro; Jaroslaw Drozdz; Friedrich Fruhwald; Lars Gullestad; Damien Logeart; Gianna Fabbri; Renato Urso; Marco Metra; John Parissis; Hans Egon Robert Persson; Piotr Ponikowski; Mathias Rauchhaus; Adriaan A Voors; Olav Wendelboe Nielsen; Faiez Zannad; Luigi Tavazzi; Heart Failure Association of the European Society of Cardiology (HFA)

doi:10.1093/eurjhf/hft050

EURObservational Research Programme: regional differences and 1-year follow-up results of the Heart Failure Pilot Survey (ESC-HF Pilot)

Aldo P Maggioni, Ulf Dahlström, Gerasimos Filippatos, Ovidiu Chioncel, Marisa Crespo Leiro, Jaroslaw Drozdz, Friedrich Fruhwald, Lars Gullestad, Damien Logeart, Gianna Fabbri, Renato Urso, Marco Metra, John Parissis, Hans Egon Robert Persson, Piotr Ponikowski, Mathias Rauchhaus, Adriaan A Voors, Olav Wendelboe Nielsen, Faiez Zannad, Luigi TavazziHeart Failure Association of the European Society of Cardiology (HFA)

Department of Clinical Medicine

448 Citations (Scopus)

Abstract

AimsThe ESC-HF Pilot survey was aimed to describe clinical epidemiology and 1-year outcomes of outpatients and inpatients with heart failure (HF). The pilot phase was also specifically aimed at validating structure, performance, and quality of the data set for continuing the survey into a permanent Registry.MethodsThe ESC-HF Pilot study is a prospective, multicentre, observational survey conducted in 136 Cardiology Centres in 12 European countries selected to represent the different health systems across Europe. All outpatients with HF and patients admitted for acute HF on 1 day per week for eight consecutive months were included. From October 2009 to May 2010, 5118 patients were included: 1892 (37%) admitted for acute HF and 3226 (63%) patients with chronic HF. The all-cause mortality rate at 1 year was 17.4% in acute HF and 7.2% in chronic stable HF. One-year hospitalization rates were 43.9% and 31.9%, respectively, in hospitalized acute and chronic HF patients. Major regional differences in 1-year mortality were observed that could be explained by differences in characteristics and treatment of the patients.ConclusionThe ESC-HF Pilot survey confirmed that acute HF is still associated with a very poor medium-term prognosis, while the widespread adoption of evidence-based treatments in patients with chronic HF seems to have improved their outcome profile. Differences across countries may be due to different local medical practice as well to differences in healthcare systems. This pilot study also offered the opportunity to refine the organizational structure for a long-term extended European network.

Original language	English
Journal	European Journal of Heart Failure
Volume	15
Issue number	7
Pages (from-to)	808-817
Number of pages	10
ISSN	1388-9842
DOIs	https://doi.org/10.1093/eurjhf/hft050
Publication status	Published - Jul 2013

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10.1093/eurjhf/hft050

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Maggioni, A. P., Dahlström, U., Filippatos, G., Chioncel, O., Crespo Leiro, M., Drozdz, J., Fruhwald, F., Gullestad, L., Logeart, D., Fabbri, G., Urso, R., Metra, M., Parissis, J., Persson, H. E. R., Ponikowski, P., Rauchhaus, M., Voors, A. A., Wendelboe Nielsen, O., Zannad, F., ... (HFA), H. F. A. O. T. E. S. O. C. (2013). EURObservational Research Programme: regional differences and 1-year follow-up results of the Heart Failure Pilot Survey (ESC-HF Pilot). European Journal of Heart Failure, 15(7), 808-817. https://doi.org/10.1093/eurjhf/hft050

Maggioni, AP, Dahlström, U, Filippatos, G, Chioncel, O, Crespo Leiro, M, Drozdz, J, Fruhwald, F, Gullestad, L, Logeart, D, Fabbri, G, Urso, R, Metra, M, Parissis, J, Persson, HER, Ponikowski, P, Rauchhaus, M, Voors, AA, Wendelboe Nielsen, O, Zannad, F, Tavazzi, L & (HFA), HFAOTESOC 2013, 'EURObservational Research Programme: regional differences and 1-year follow-up results of the Heart Failure Pilot Survey (ESC-HF Pilot)', European Journal of Heart Failure, vol. 15, no. 7, pp. 808-817. https://doi.org/10.1093/eurjhf/hft050

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title = "EURObservational Research Programme: regional differences and 1-year follow-up results of the Heart Failure Pilot Survey (ESC-HF Pilot)",

abstract = "AimsThe ESC-HF Pilot survey was aimed to describe clinical epidemiology and 1-year outcomes of outpatients and inpatients with heart failure (HF). The pilot phase was also specifically aimed at validating structure, performance, and quality of the data set for continuing the survey into a permanent Registry.MethodsThe ESC-HF Pilot study is a prospective, multicentre, observational survey conducted in 136 Cardiology Centres in 12 European countries selected to represent the different health systems across Europe. All outpatients with HF and patients admitted for acute HF on 1 day per week for eight consecutive months were included. From October 2009 to May 2010, 5118 patients were included: 1892 (37%) admitted for acute HF and 3226 (63%) patients with chronic HF. The all-cause mortality rate at 1 year was 17.4% in acute HF and 7.2% in chronic stable HF. One-year hospitalization rates were 43.9% and 31.9%, respectively, in hospitalized acute and chronic HF patients. Major regional differences in 1-year mortality were observed that could be explained by differences in characteristics and treatment of the patients.ConclusionThe ESC-HF Pilot survey confirmed that acute HF is still associated with a very poor medium-term prognosis, while the widespread adoption of evidence-based treatments in patients with chronic HF seems to have improved their outcome profile. Differences across countries may be due to different local medical practice as well to differences in healthcare systems. This pilot study also offered the opportunity to refine the organizational structure for a long-term extended European network.",

author = "Maggioni, {Aldo P} and Ulf Dahlstr{\"o}m and Gerasimos Filippatos and Ovidiu Chioncel and {Crespo Leiro}, Marisa and Jaroslaw Drozdz and Friedrich Fruhwald and Lars Gullestad and Damien Logeart and Gianna Fabbri and Renato Urso and Marco Metra and John Parissis and Persson, {Hans Egon Robert} and Piotr Ponikowski and Mathias Rauchhaus and Voors, {Adriaan A} and {Wendelboe Nielsen}, Olav and Faiez Zannad and Luigi Tavazzi and (HFA), {Heart Failure Association of the European Society of Cardiology}",

year = "2013",

month = jul,

doi = "10.1093/eurjhf/hft050",

language = "English",

volume = "15",

pages = "808--817",

journal = "European Journal of Heart Failure",

issn = "1388-9842",

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T1 - EURObservational Research Programme

T2 - regional differences and 1-year follow-up results of the Heart Failure Pilot Survey (ESC-HF Pilot)

AU - Maggioni, Aldo P

AU - Dahlström, Ulf

AU - Filippatos, Gerasimos

AU - Chioncel, Ovidiu

AU - Crespo Leiro, Marisa

AU - Drozdz, Jaroslaw

AU - Fruhwald, Friedrich

AU - Gullestad, Lars

AU - Logeart, Damien

AU - Fabbri, Gianna

AU - Urso, Renato

AU - Metra, Marco

AU - Parissis, John

AU - Persson, Hans Egon Robert

AU - Ponikowski, Piotr

AU - Rauchhaus, Mathias

AU - Voors, Adriaan A

AU - Wendelboe Nielsen, Olav

AU - Zannad, Faiez

AU - Tavazzi, Luigi

AU - (HFA), Heart Failure Association of the European Society of Cardiology

PY - 2013/7

Y1 - 2013/7

N2 - AimsThe ESC-HF Pilot survey was aimed to describe clinical epidemiology and 1-year outcomes of outpatients and inpatients with heart failure (HF). The pilot phase was also specifically aimed at validating structure, performance, and quality of the data set for continuing the survey into a permanent Registry.MethodsThe ESC-HF Pilot study is a prospective, multicentre, observational survey conducted in 136 Cardiology Centres in 12 European countries selected to represent the different health systems across Europe. All outpatients with HF and patients admitted for acute HF on 1 day per week for eight consecutive months were included. From October 2009 to May 2010, 5118 patients were included: 1892 (37%) admitted for acute HF and 3226 (63%) patients with chronic HF. The all-cause mortality rate at 1 year was 17.4% in acute HF and 7.2% in chronic stable HF. One-year hospitalization rates were 43.9% and 31.9%, respectively, in hospitalized acute and chronic HF patients. Major regional differences in 1-year mortality were observed that could be explained by differences in characteristics and treatment of the patients.ConclusionThe ESC-HF Pilot survey confirmed that acute HF is still associated with a very poor medium-term prognosis, while the widespread adoption of evidence-based treatments in patients with chronic HF seems to have improved their outcome profile. Differences across countries may be due to different local medical practice as well to differences in healthcare systems. This pilot study also offered the opportunity to refine the organizational structure for a long-term extended European network.

AB - AimsThe ESC-HF Pilot survey was aimed to describe clinical epidemiology and 1-year outcomes of outpatients and inpatients with heart failure (HF). The pilot phase was also specifically aimed at validating structure, performance, and quality of the data set for continuing the survey into a permanent Registry.MethodsThe ESC-HF Pilot study is a prospective, multicentre, observational survey conducted in 136 Cardiology Centres in 12 European countries selected to represent the different health systems across Europe. All outpatients with HF and patients admitted for acute HF on 1 day per week for eight consecutive months were included. From October 2009 to May 2010, 5118 patients were included: 1892 (37%) admitted for acute HF and 3226 (63%) patients with chronic HF. The all-cause mortality rate at 1 year was 17.4% in acute HF and 7.2% in chronic stable HF. One-year hospitalization rates were 43.9% and 31.9%, respectively, in hospitalized acute and chronic HF patients. Major regional differences in 1-year mortality were observed that could be explained by differences in characteristics and treatment of the patients.ConclusionThe ESC-HF Pilot survey confirmed that acute HF is still associated with a very poor medium-term prognosis, while the widespread adoption of evidence-based treatments in patients with chronic HF seems to have improved their outcome profile. Differences across countries may be due to different local medical practice as well to differences in healthcare systems. This pilot study also offered the opportunity to refine the organizational structure for a long-term extended European network.

U2 - 10.1093/eurjhf/hft050

DO - 10.1093/eurjhf/hft050

M3 - Journal article

C2 - 23537547

SN - 1388-9842

VL - 15

SP - 808

EP - 817

JO - European Journal of Heart Failure

JF - European Journal of Heart Failure

IS - 7

ER -

EURObservational Research Programme: regional differences and 1-year follow-up results of the Heart Failure Pilot Survey (ESC-HF Pilot)

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