Emerging versions of patient involvement with Patient Reported Outcomes

TY - CONF

T1 - Emerging versions of patient involvement with Patient Reported Outcomes

AU - Langstrup, Henriette

N1 - Conference code: 6th

PY - 2017

Y1 - 2017

N2 - It is a central argument in the growing Danish PRO-arena, that a large-scale collection of PRO from patients in the Danish Healthcare system will pave the way for more genuine patient involvement in clinical decision-making, quality management and governance of the health services. In this paper I discuss how patient involvement is being (re)configured when increasingly connected to national visions of participatory healthcare. A central discussion centers on ‘meaningful use’ of patient-generated data promoting patients’ expectations and experiences as a criterion for how to proceed with the national use of PRO. But how do assumptions of what constitutes meaning for patients interact with the kinds of roles that patients are expected to take on with PROtools? What forms of participation are assumed to be meaningful and thus good and which are not? In sketching emerging versions of patient involvement with PRO, I want to point to the need for further empirical exploration of how patients and professionals engage with PRO in specific daily practices and to stimulate a general discussion of all too simple normativities of the so-called ‘participatory turn’ in healthcare. I draw onempirical insights from an ongoing study of establishment of a national initiative for systematic collection of PROs in Denmark.

AB - It is a central argument in the growing Danish PRO-arena, that a large-scale collection of PRO from patients in the Danish Healthcare system will pave the way for more genuine patient involvement in clinical decision-making, quality management and governance of the health services. In this paper I discuss how patient involvement is being (re)configured when increasingly connected to national visions of participatory healthcare. A central discussion centers on ‘meaningful use’ of patient-generated data promoting patients’ expectations and experiences as a criterion for how to proceed with the national use of PRO. But how do assumptions of what constitutes meaning for patients interact with the kinds of roles that patients are expected to take on with PROtools? What forms of participation are assumed to be meaningful and thus good and which are not? In sketching emerging versions of patient involvement with PRO, I want to point to the need for further empirical exploration of how patients and professionals engage with PRO in specific daily practices and to stimulate a general discussion of all too simple normativities of the so-called ‘participatory turn’ in healthcare. I draw onempirical insights from an ongoing study of establishment of a national initiative for systematic collection of PROs in Denmark.

UR - http://conferences.au.dk/infrahealth2017/

U2 - 10.18420/ihc2017_005

DO - 10.18420/ihc2017_005

M3 - Paper

T2 - InfraHealth 2017<br/>The 6th international workshop on Infrastructures for healthcare (IHC)

Y2 - 22 June 2017 through 23 June 2017

ER -