Die EPSILON-studie: Versorgung von patienten mit schizophrenie in fünf Europäischen zentren

Thomas Becker; Martin Knapp; D. Chisholm; P. McCrone; Helle Charlotte Knudsen; Aart Schene; Graham Thornicroft; M. Leese; M. Tansella; J. L. Vázquez-Barquero; M. Koeter; K. Meijer; M. Monden; A. Schene; M. Sijsenaar; B. V. Wijngaarden; Helle Charlotte Knudsen; A. Larsen; K. Martiny; C. Schon; B. Welcher; T. Becker; J. Beecham; L. Brooks; D. Chisholm; G. Griffiths; J. Grove; M. Knapp; M. Leese; P. McCrone; S. Padfield; I. R. White; A. A. Arrizabalaga; L. Gaite; M. P. Retuerto; J. L. Vázquez-Barquero; E. Vázquez Bourgon; G. Bisoffi; G. Bisoffi; D. Cristofalo; R. Dall'Agnola; A. Lasalvia; M. Ruggeri; M. Tansella

doi:10.1007/BF02962494

Die EPSILON-studie: Versorgung von patienten mit schizophrenie in fünf Europäischen zentren

Translated title of the contribution: The EPSILON study: Care for people with schizophrenia in five European centres

Thomas Becker, Martin Knapp, D. Chisholm, P. McCrone, Helle Charlotte Knudsen, Aart Schene, Graham Thornicroft, M. Leese, M. Tansella, J. L. Vázquez-Barquero, M. Koeter, K. Meijer, M. Monden, A. Schene, M. Sijsenaar, B. V. Wijngaarden, Helle Charlotte Knudsen, A. Larsen, K. Martiny, C. SchonB. Welcher, T. Becker, J. Beecham, L. Brooks, D. Chisholm, G. Griffiths, J. Grove, M. Knapp, M. Leese, P. McCrone, S. Padfield, I. R. White, A. A. Arrizabalaga, L. Gaite, M. P. Retuerto, J. L. Vázquez-Barquero, E. Vázquez Bourgon, G. Bisoffi, G. Bisoffi, D. Cristofalo, R. Dall'Agnola, A. Lasalvia, M. Ruggeri, M. Tansella

Abstract

The EPSILON study on care for people with schizophrenia in five European centres (Amsterdam, Copenhagen, London, Santander, Verona) is presented. In a first step instruments to assess needs for care (Camberwell Assessment of Need), to record and calculate service utilisation and costs (Client Sociodemographic and Service Receipt Inventory), on quality of life (Lancashire Quality of Life Profile), satisfaction with services (Verona Service Satisfaction Scale), and carer burden (Involvement Evaluation Questionnaire) were adapted for use in five European languages using translation, back translation and focus groups. The instruments were used in a sample of 404 subjects with a SCAN (Item Group Checklist) ICD-10 diagnosis of schizophrenia across sites. Instrument psychometric properties were assessed following the adaptation process, and performance was varied but acceptable to good. There were substantial differences in care systems for people with schizophrenia some of which are likely to have contributed to substantial differences in the pattern of met and unmet needs, service use and costs. Variations in needs and service costs as well as limitations of the study are discussed.

Translated title of the contribution	The EPSILON study: Care for people with schizophrenia in five European centres
Original language	German
Journal	Zeitschrift fur Gesundheitswissenschaften
Volume	10
Issue number	1
Pages (from-to)	72-94
Number of pages	23
ISSN	0943-1853
DOIs	https://doi.org/10.1007/BF02962494
Publication status	Published - 1 Jan 2002

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Becker, T., Knapp, M., Chisholm, D., McCrone, P., Knudsen, H. C., Schene, A., Thornicroft, G., Leese, M., Tansella, M., Vázquez-Barquero, J. L., Koeter, M., Meijer, K., Monden, M., Schene, A., Sijsenaar, M., Wijngaarden, B. V., Knudsen, H. C., Larsen, A., Martiny, K., ... Tansella, M. (2002). Die EPSILON-studie: Versorgung von patienten mit schizophrenie in fünf Europäischen zentren. Zeitschrift fur Gesundheitswissenschaften, 10(1), 72-94. https://doi.org/10.1007/BF02962494

Becker, T, Knapp, M, Chisholm, D, McCrone, P, Knudsen, HC, Schene, A, Thornicroft, G, Leese, M, Tansella, M, Vázquez-Barquero, JL, Koeter, M, Meijer, K, Monden, M, Schene, A, Sijsenaar, M, Wijngaarden, BV, Knudsen, HC, Larsen, A, Martiny, K, Schon, C, Welcher, B, Becker, T, Beecham, J, Brooks, L, Chisholm, D, Griffiths, G, Grove, J, Knapp, M, Leese, M, McCrone, P, Padfield, S, White, IR, Arrizabalaga, AA, Gaite, L, Retuerto, MP, Vázquez-Barquero, JL, Vázquez Bourgon, E, Bisoffi, G, Bisoffi, G, Cristofalo, D, Dall'Agnola, R, Lasalvia, A, Ruggeri, M & Tansella, M 2002, 'Die EPSILON-studie: Versorgung von patienten mit schizophrenie in fünf Europäischen zentren', Zeitschrift fur Gesundheitswissenschaften, vol. 10, no. 1, pp. 72-94. https://doi.org/10.1007/BF02962494

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title = "Die EPSILON-studie: Versorgung von patienten mit schizophrenie in f{\"u}nf Europ{\"a}ischen zentren",

abstract = "The EPSILON study on care for people with schizophrenia in five European centres (Amsterdam, Copenhagen, London, Santander, Verona) is presented. In a first step instruments to assess needs for care (Camberwell Assessment of Need), to record and calculate service utilisation and costs (Client Sociodemographic and Service Receipt Inventory), on quality of life (Lancashire Quality of Life Profile), satisfaction with services (Verona Service Satisfaction Scale), and carer burden (Involvement Evaluation Questionnaire) were adapted for use in five European languages using translation, back translation and focus groups. The instruments were used in a sample of 404 subjects with a SCAN (Item Group Checklist) ICD-10 diagnosis of schizophrenia across sites. Instrument psychometric properties were assessed following the adaptation process, and performance was varied but acceptable to good. There were substantial differences in care systems for people with schizophrenia some of which are likely to have contributed to substantial differences in the pattern of met and unmet needs, service use and costs. Variations in needs and service costs as well as limitations of the study are discussed.",

keywords = "Community psychiatry, Comparative studies, Health services research, Schizophrenia",

author = "Thomas Becker and Martin Knapp and D. Chisholm and P. McCrone and Knudsen, {Helle Charlotte} and Aart Schene and Graham Thornicroft and M. Leese and M. Tansella and V{\'a}zquez-Barquero, {J. L.} and M. Koeter and K. Meijer and M. Monden and A. Schene and M. Sijsenaar and Wijngaarden, {B. V.} and Knudsen, {Helle Charlotte} and A. Larsen and K. Martiny and C. Schon and B. Welcher and T. Becker and J. Beecham and L. Brooks and D. Chisholm and G. Griffiths and J. Grove and M. Knapp and M. Leese and P. McCrone and S. Padfield and White, {I. R.} and Arrizabalaga, {A. A.} and L. Gaite and Retuerto, {M. P.} and V{\'a}zquez-Barquero, {J. L.} and {V{\'a}zquez Bourgon}, E. and G. Bisoffi and G. Bisoffi and D. Cristofalo and R. Dall'Agnola and A. Lasalvia and M. Ruggeri and M. Tansella",

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T1 - Die EPSILON-studie

T2 - Versorgung von patienten mit schizophrenie in fünf Europäischen zentren

AU - Becker, Thomas

AU - Knapp, Martin

AU - Chisholm, D.

AU - McCrone, P.

AU - Knudsen, Helle Charlotte

AU - Schene, Aart

AU - Thornicroft, Graham

AU - Leese, M.

AU - Tansella, M.

AU - Vázquez-Barquero, J. L.

AU - Koeter, M.

AU - Meijer, K.

AU - Monden, M.

AU - Schene, A.

AU - Sijsenaar, M.

AU - Wijngaarden, B. V.

AU - Knudsen, Helle Charlotte

AU - Larsen, A.

AU - Martiny, K.

AU - Schon, C.

AU - Welcher, B.

AU - Becker, T.

AU - Beecham, J.

AU - Brooks, L.

AU - Chisholm, D.

AU - Griffiths, G.

AU - Grove, J.

AU - Knapp, M.

AU - Leese, M.

AU - McCrone, P.

AU - Padfield, S.

AU - White, I. R.

AU - Arrizabalaga, A. A.

AU - Gaite, L.

AU - Retuerto, M. P.

AU - Vázquez-Barquero, J. L.

AU - Vázquez Bourgon, E.

AU - Bisoffi, G.

AU - Cristofalo, D.

AU - Dall'Agnola, R.

AU - Lasalvia, A.

AU - Ruggeri, M.

AU - Tansella, M.

PY - 2002/1/1

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N2 - The EPSILON study on care for people with schizophrenia in five European centres (Amsterdam, Copenhagen, London, Santander, Verona) is presented. In a first step instruments to assess needs for care (Camberwell Assessment of Need), to record and calculate service utilisation and costs (Client Sociodemographic and Service Receipt Inventory), on quality of life (Lancashire Quality of Life Profile), satisfaction with services (Verona Service Satisfaction Scale), and carer burden (Involvement Evaluation Questionnaire) were adapted for use in five European languages using translation, back translation and focus groups. The instruments were used in a sample of 404 subjects with a SCAN (Item Group Checklist) ICD-10 diagnosis of schizophrenia across sites. Instrument psychometric properties were assessed following the adaptation process, and performance was varied but acceptable to good. There were substantial differences in care systems for people with schizophrenia some of which are likely to have contributed to substantial differences in the pattern of met and unmet needs, service use and costs. Variations in needs and service costs as well as limitations of the study are discussed.

AB - The EPSILON study on care for people with schizophrenia in five European centres (Amsterdam, Copenhagen, London, Santander, Verona) is presented. In a first step instruments to assess needs for care (Camberwell Assessment of Need), to record and calculate service utilisation and costs (Client Sociodemographic and Service Receipt Inventory), on quality of life (Lancashire Quality of Life Profile), satisfaction with services (Verona Service Satisfaction Scale), and carer burden (Involvement Evaluation Questionnaire) were adapted for use in five European languages using translation, back translation and focus groups. The instruments were used in a sample of 404 subjects with a SCAN (Item Group Checklist) ICD-10 diagnosis of schizophrenia across sites. Instrument psychometric properties were assessed following the adaptation process, and performance was varied but acceptable to good. There were substantial differences in care systems for people with schizophrenia some of which are likely to have contributed to substantial differences in the pattern of met and unmet needs, service use and costs. Variations in needs and service costs as well as limitations of the study are discussed.

KW - Community psychiatry

KW - Comparative studies

KW - Health services research

KW - Schizophrenia

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U2 - 10.1007/BF02962494

DO - 10.1007/BF02962494

M3 - Review

AN - SCOPUS:0036190714

SN - 0943-1853

VL - 10

SP - 72

EP - 94

JO - Zeitschrift fur Gesundheitswissenschaften

JF - Zeitschrift fur Gesundheitswissenschaften

IS - 1

ER -

Die EPSILON-studie: Versorgung von patienten mit schizophrenie in fünf Europäischen zentren

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