TY - JOUR
T1 - Danish respiratory society position paper
T2 - palliative care in patients with chronic progressive non-malignant lung diseases
AU - Marsaa, Kristoffer
AU - Gundestrup, Svend
AU - Jensen, Jens-Ulrik
AU - Lange, Peter
AU - Løkke, Anders
AU - Roberts, Nassim Bazeghi
AU - Shaker, Saher Burhan
AU - Sørensen, Anita Rath
AU - Titlestad, Ingrid Louise
AU - Thomsen, Laura Hohwü
AU - Weinreich, Ulla Møller
AU - Bendstrup, Elisabeth
AU - Wilcke, Torgny
PY - 2018/1/1
Y1 - 2018/1/1
N2 -
Background:
Chronic non-malignant lung diseases such as chronic obstructive pulmonary disease (COPD) and interstitial lung diseases (ILD) result in reduced quality of life (QoL), a high symptom burden and reduced survival. Patients with chronic non-malignant lung disease often have limited access to palliative care. The symptom burden and the QoL of these patients resembles patients with cancer and the general palliative approach is similar. However, the disease trajectory is often slow and unpredictable, and the palliative effort must be built on accessibility, continuity and professional competences. The Danish Health Authority as well as the WHO recommends that there is access to palliative care for all patients with life-threatening diseases regardless of diagnosis. In 2011, the Danish Health Authority requested that the national medical societies would to formulate guidelines for palliation.
Methods:
In 2015, a group of members of the Danish Respiratory Society (DRS) was appointed for this purpose. It was composed of experienced ILD and COPD researchers as well as clinicians from different parts of Denmark. A literature review was made, a draft was prepared, and all recommendations were agreed upon unanimously.
Results:
The Danish version of the position paper was finally submitted for review and accepted by all members of DRS.
Conclusion:
In this position paper we provide recommendations on the terminology of chronic and terminal lung failure, rehabilitation and palliative care, advanced care planning, informal caregivers and bereavement, symptom management, the imminently dying patient, and organization of palliative care for patients with chronic non-malignant lung diseases.
AB -
Background:
Chronic non-malignant lung diseases such as chronic obstructive pulmonary disease (COPD) and interstitial lung diseases (ILD) result in reduced quality of life (QoL), a high symptom burden and reduced survival. Patients with chronic non-malignant lung disease often have limited access to palliative care. The symptom burden and the QoL of these patients resembles patients with cancer and the general palliative approach is similar. However, the disease trajectory is often slow and unpredictable, and the palliative effort must be built on accessibility, continuity and professional competences. The Danish Health Authority as well as the WHO recommends that there is access to palliative care for all patients with life-threatening diseases regardless of diagnosis. In 2011, the Danish Health Authority requested that the national medical societies would to formulate guidelines for palliation.
Methods:
In 2015, a group of members of the Danish Respiratory Society (DRS) was appointed for this purpose. It was composed of experienced ILD and COPD researchers as well as clinicians from different parts of Denmark. A literature review was made, a draft was prepared, and all recommendations were agreed upon unanimously.
Results:
The Danish version of the position paper was finally submitted for review and accepted by all members of DRS.
Conclusion:
In this position paper we provide recommendations on the terminology of chronic and terminal lung failure, rehabilitation and palliative care, advanced care planning, informal caregivers and bereavement, symptom management, the imminently dying patient, and organization of palliative care for patients with chronic non-malignant lung diseases.
U2 - 10.1080/20018525.2018.1530029
DO - 10.1080/20018525.2018.1530029
M3 - Review
C2 - 30357015
SN - 2001-8525
VL - 5
SP - 1530029
JO - European Clinical Respiratory Journal
JF - European Clinical Respiratory Journal
IS - 1
ER -
