TY - JOUR
T1 - Chronic Paradoxes
T2 - A Systematic Review of Qualitative Family Perspectives on Living with Congenital Heart Defects
AU - Svensson, Marie Kofod
AU - Wahlberg, Ayo
AU - Gislasson, Gunnar Hilmar
PY - 2020/1/1
Y1 - 2020/1/1
N2 - There have been substantial advances in the diagnostics and treatment of congenital heart defects (CHDs) in recent decades, and this has improved survival significantly. Consequently, there is a growing interest in how CHDs affect the daily lives of children and youth. We examine life with CHDs as a particular kind of living from the perspectives of both children and youth with CHDs and their families through a systematic review of existing qualitative research. Based on a meta-ethnographic analysis of 20 articles (identified through PubMed, EMBASE, EBSCOhost, PSYCHinfo, Scopus, and Web of Science from January 7 to 12, 2016), we argue that living with CHDs is characterized by chronic paradoxes arising out of the transitions, normalities, and futures that families have to navigate.
AB - There have been substantial advances in the diagnostics and treatment of congenital heart defects (CHDs) in recent decades, and this has improved survival significantly. Consequently, there is a growing interest in how CHDs affect the daily lives of children and youth. We examine life with CHDs as a particular kind of living from the perspectives of both children and youth with CHDs and their families through a systematic review of existing qualitative research. Based on a meta-ethnographic analysis of 20 articles (identified through PubMed, EMBASE, EBSCOhost, PSYCHinfo, Scopus, and Web of Science from January 7 to 12, 2016), we argue that living with CHDs is characterized by chronic paradoxes arising out of the transitions, normalities, and futures that families have to navigate.
U2 - 10.1177/1049732319869909
DO - 10.1177/1049732319869909
M3 - Journal article
SN - 1049-7323
JO - Qualitative Health Research
JF - Qualitative Health Research
ER -