Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium

Muhammad Kassim Javaid; Alison Boyce; Natasha Appelman-Dijkstra; Juling Ong; Patrizia Defabianis; Amaka Offiah; Paul Arunde; Nick Shaw; Valter Dal Pos; Ann Underhil; Deanna Portero; Lisa Heral; Anne-Marie Heegaard; Laura Masi; Fergal Monsell; Robert Stanton; Pieter Durk Sander Dijkstra; Maria Luisa Brandi; Roland Chapurlat; Neveen Agnes Therese Hamdy; Michael Terrence Collins

doi:10.1186/s13023-019-1102-9

Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium

Muhammad Kassim Javaid, Alison Boyce, Natasha Appelman-Dijkstra, Juling Ong, Patrizia Defabianis, Amaka Offiah, Paul Arunde, Nick Shaw, Valter Dal Pos, Ann Underhil, Deanna Portero, Lisa Heral, Anne-Marie Heegaard, Laura Masi, Fergal Monsell, Robert Stanton, Pieter Durk Sander Dijkstra, Maria Luisa Brandi, Roland Chapurlat, Neveen Agnes Therese HamdyMichael Terrence Collins

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Original language	English
Article number	139
Journal	Orphanet Journal of Rare Diseases
Volume	14
Number of pages	19
ISSN	1750-1172
DOIs	https://doi.org/10.1186/s13023-019-1102-9
Publication status	Published - 13 Jun 2019

Keywords

Fibrous dysplasia
McCune Albright syndrome
Guidelines
Diagnosis
Management

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s13023-019-1102-9Licence: CC BY

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Javaid, M. K., Boyce, A., Appelman-Dijkstra, N., Ong, J., Defabianis, P., Offiah, A., Arunde, P., Shaw, N., Dal Pos, V., Underhil, A., Portero, D., Heral, L., Heegaard, A.-M., Masi, L., Monsell, F., Stanton, R., Dijkstra, P. D. S., Brandi, M. L., Chapurlat, R., ... Collins, M. T. (2019). Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium. Orphanet Journal of Rare Diseases, 14, Article 139. https://doi.org/10.1186/s13023-019-1102-9

Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium. / Javaid, Muhammad Kassim; Boyce, Alison; Appelman-Dijkstra, Natasha et al.
In: Orphanet Journal of Rare Diseases, Vol. 14, 139, 13.06.2019.

Research output: Contribution to journal › Journal article › Research › peer-review

Javaid, MK, Boyce, A, Appelman-Dijkstra, N, Ong, J, Defabianis, P, Offiah, A, Arunde, P, Shaw, N, Dal Pos, V, Underhil, A, Portero, D, Heral, L, Heegaard, A-M, Masi, L, Monsell, F, Stanton, R, Dijkstra, PDS, Brandi, ML, Chapurlat, R, Hamdy, NAT & Collins, MT 2019, 'Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium', Orphanet Journal of Rare Diseases, vol. 14, 139. https://doi.org/10.1186/s13023-019-1102-9

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keywords = "Fibrous dysplasia, McCune Albright syndrome, Guidelines, Diagnosis, Management",

author = "Javaid, {Muhammad Kassim} and Alison Boyce and Natasha Appelman-Dijkstra and Juling Ong and Patrizia Defabianis and Amaka Offiah and Paul Arunde and Nick Shaw and {Dal Pos}, Valter and Ann Underhil and Deanna Portero and Lisa Heral and Anne-Marie Heegaard and Laura Masi and Fergal Monsell and Robert Stanton and Dijkstra, {Pieter Durk Sander} and Brandi, {Maria Luisa} and Roland Chapurlat and Hamdy, {Neveen Agnes Therese} and Collins, {Michael Terrence}",

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AU - Javaid, Muhammad Kassim

AU - Boyce, Alison

AU - Appelman-Dijkstra, Natasha

AU - Ong, Juling

AU - Defabianis, Patrizia

AU - Offiah, Amaka

AU - Arunde, Paul

AU - Shaw, Nick

AU - Dal Pos, Valter

AU - Underhil, Ann

AU - Portero, Deanna

AU - Heral, Lisa

AU - Heegaard, Anne-Marie

AU - Masi, Laura

AU - Monsell, Fergal

AU - Stanton, Robert

AU - Dijkstra, Pieter Durk Sander

AU - Brandi, Maria Luisa

AU - Chapurlat, Roland

AU - Hamdy, Neveen Agnes Therese

AU - Collins, Michael Terrence

PY - 2019/6/13

Y1 - 2019/6/13

KW - Fibrous dysplasia

KW - McCune Albright syndrome

KW - Guidelines

KW - Diagnosis

KW - Management

U2 - 10.1186/s13023-019-1102-9

DO - 10.1186/s13023-019-1102-9

M3 - Journal article

C2 - 31196103

SN - 1750-1172

VL - 14

JO - Orphanet Journal of Rare Diseases

JF - Orphanet Journal of Rare Diseases

M1 - 139

ER -

Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium

Keywords

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