The Danish Prostate Cancer Database

Mary Nguyen-Nielsen; Søren Høyer; Søren Friis; Steinbjørn Hansen; Klaus Brasso; Erik Breth Jakobsen; Mette Moe; Heidi Larsson; Mette Søgaard; Anne Nakano; Michael Borre

doi:10.2147/CLEP.S100256

The Danish Prostate Cancer Database

Mary Nguyen-Nielsen, Søren Høyer, Søren Friis, Steinbjørn Hansen, Klaus Brasso, Erik Breth Jakobsen, Mette Moe, Heidi Larsson, Mette Søgaard, Anne Nakano, Michael Borre

Institut for Klinisk Medicin

3 Citationer (Scopus)

Abstract

AIM OF DATABASE: The Danish Prostate Cancer Database (DAPROCAdata) is a nationwide clinical cancer database that has prospectively collected data on patients with incident prostate cancer in Denmark since February 2010. The overall aim of the DAPROCAdata is to improve the quality of prostate cancer care in Denmark by systematically collecting key clinical variables for the purposes of health care monitoring, quality improvement, and research.

STUDY POPULATION: All Danish patients with histologically verified prostate cancer are included in the DAPROCAdata.

MAIN VARIABLES: The DAPROCAdata registers clinical data and selected characteristics for patients with prostate cancer at diagnosis. Data are collected from the linkage of nationwide health registries and supplemented with online registration of key clinical variables by treating physicians at urological and oncological departments. Main variables include Gleason scores, cancer staging, prostate-specific antigen values, and therapeutic measures (active surveillance, surgery, radiotherapy, endocrine therapy, and chemotherapy).

DESCRIPTIVE DATA: In total, 22,332 patients with prostate cancer were registered in DAPROCAdata as of April 2015. A key feature of DAPROCAdata is the routine collection of patient-reported outcome measures (PROM), including data on quality-of-life (pain levels, physical activity, sexual function, depression, urine and fecal incontinence) and lifestyle factors (smoking, alcohol consumption, and body mass index). PROM data are derived from questionnaires distributed at diagnosis and at 1-year and 3-year follow-up. Hitherto, the PROM data have been limited by low completeness (26% among newly diagnosed patients in 2014).

CONCLUSION: DAPROCAdata is a comprehensive, yet still young clinical database. Efforts to improve data collection, data validity, and completeness are ongoing and of high priority.

Originalsprog	Engelsk
Tidsskrift	Clinical Epidemiology
Vol/bind	8
Sider (fra-til)	649-653
Antal sider	5
ISSN	1179-1349
DOI	https://doi.org/10.2147/CLEP.S100256
Status	Udgivet - 25 okt. 2016

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10.2147/CLEP.S100256Licens: CC BY-NC

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title = "The Danish Prostate Cancer Database",

abstract = "AIM OF DATABASE: The Danish Prostate Cancer Database (DAPROCAdata) is a nationwide clinical cancer database that has prospectively collected data on patients with incident prostate cancer in Denmark since February 2010. The overall aim of the DAPROCAdata is to improve the quality of prostate cancer care in Denmark by systematically collecting key clinical variables for the purposes of health care monitoring, quality improvement, and research.STUDY POPULATION: All Danish patients with histologically verified prostate cancer are included in the DAPROCAdata.MAIN VARIABLES: The DAPROCAdata registers clinical data and selected characteristics for patients with prostate cancer at diagnosis. Data are collected from the linkage of nationwide health registries and supplemented with online registration of key clinical variables by treating physicians at urological and oncological departments. Main variables include Gleason scores, cancer staging, prostate-specific antigen values, and therapeutic measures (active surveillance, surgery, radiotherapy, endocrine therapy, and chemotherapy).DESCRIPTIVE DATA: In total, 22,332 patients with prostate cancer were registered in DAPROCAdata as of April 2015. A key feature of DAPROCAdata is the routine collection of patient-reported outcome measures (PROM), including data on quality-of-life (pain levels, physical activity, sexual function, depression, urine and fecal incontinence) and lifestyle factors (smoking, alcohol consumption, and body mass index). PROM data are derived from questionnaires distributed at diagnosis and at 1-year and 3-year follow-up. Hitherto, the PROM data have been limited by low completeness (26% among newly diagnosed patients in 2014).CONCLUSION: DAPROCAdata is a comprehensive, yet still young clinical database. Efforts to improve data collection, data validity, and completeness are ongoing and of high priority.",

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author = "Mary Nguyen-Nielsen and S{\o}ren H{\o}yer and S{\o}ren Friis and Steinbj{\o}rn Hansen and Klaus Brasso and Jakobsen, {Erik Breth} and Mette Moe and Heidi Larsson and Mette S{\o}gaard and Anne Nakano and Michael Borre",

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doi = "10.2147/CLEP.S100256",

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T1 - The Danish Prostate Cancer Database

AU - Nguyen-Nielsen, Mary

AU - Høyer, Søren

AU - Friis, Søren

AU - Hansen, Steinbjørn

AU - Brasso, Klaus

AU - Jakobsen, Erik Breth

AU - Moe, Mette

AU - Larsson, Heidi

AU - Søgaard, Mette

AU - Nakano, Anne

AU - Borre, Michael

PY - 2016/10/25

Y1 - 2016/10/25

N2 - AIM OF DATABASE: The Danish Prostate Cancer Database (DAPROCAdata) is a nationwide clinical cancer database that has prospectively collected data on patients with incident prostate cancer in Denmark since February 2010. The overall aim of the DAPROCAdata is to improve the quality of prostate cancer care in Denmark by systematically collecting key clinical variables for the purposes of health care monitoring, quality improvement, and research.STUDY POPULATION: All Danish patients with histologically verified prostate cancer are included in the DAPROCAdata.MAIN VARIABLES: The DAPROCAdata registers clinical data and selected characteristics for patients with prostate cancer at diagnosis. Data are collected from the linkage of nationwide health registries and supplemented with online registration of key clinical variables by treating physicians at urological and oncological departments. Main variables include Gleason scores, cancer staging, prostate-specific antigen values, and therapeutic measures (active surveillance, surgery, radiotherapy, endocrine therapy, and chemotherapy).DESCRIPTIVE DATA: In total, 22,332 patients with prostate cancer were registered in DAPROCAdata as of April 2015. A key feature of DAPROCAdata is the routine collection of patient-reported outcome measures (PROM), including data on quality-of-life (pain levels, physical activity, sexual function, depression, urine and fecal incontinence) and lifestyle factors (smoking, alcohol consumption, and body mass index). PROM data are derived from questionnaires distributed at diagnosis and at 1-year and 3-year follow-up. Hitherto, the PROM data have been limited by low completeness (26% among newly diagnosed patients in 2014).CONCLUSION: DAPROCAdata is a comprehensive, yet still young clinical database. Efforts to improve data collection, data validity, and completeness are ongoing and of high priority.

AB - AIM OF DATABASE: The Danish Prostate Cancer Database (DAPROCAdata) is a nationwide clinical cancer database that has prospectively collected data on patients with incident prostate cancer in Denmark since February 2010. The overall aim of the DAPROCAdata is to improve the quality of prostate cancer care in Denmark by systematically collecting key clinical variables for the purposes of health care monitoring, quality improvement, and research.STUDY POPULATION: All Danish patients with histologically verified prostate cancer are included in the DAPROCAdata.MAIN VARIABLES: The DAPROCAdata registers clinical data and selected characteristics for patients with prostate cancer at diagnosis. Data are collected from the linkage of nationwide health registries and supplemented with online registration of key clinical variables by treating physicians at urological and oncological departments. Main variables include Gleason scores, cancer staging, prostate-specific antigen values, and therapeutic measures (active surveillance, surgery, radiotherapy, endocrine therapy, and chemotherapy).DESCRIPTIVE DATA: In total, 22,332 patients with prostate cancer were registered in DAPROCAdata as of April 2015. A key feature of DAPROCAdata is the routine collection of patient-reported outcome measures (PROM), including data on quality-of-life (pain levels, physical activity, sexual function, depression, urine and fecal incontinence) and lifestyle factors (smoking, alcohol consumption, and body mass index). PROM data are derived from questionnaires distributed at diagnosis and at 1-year and 3-year follow-up. Hitherto, the PROM data have been limited by low completeness (26% among newly diagnosed patients in 2014).CONCLUSION: DAPROCAdata is a comprehensive, yet still young clinical database. Efforts to improve data collection, data validity, and completeness are ongoing and of high priority.

KW - Review

KW - Journal Article

U2 - 10.2147/CLEP.S100256

DO - 10.2147/CLEP.S100256

M3 - Journal article

C2 - 27843346

SN - 1179-1349

VL - 8

SP - 649

EP - 653

JO - Clinical Epidemiology

JF - Clinical Epidemiology

ER -

The Danish Prostate Cancer Database

Abstract

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