Social integration of adults with cerebral palsy.

Susan Ishøy Michelsen; Peter Uldall; Thomas Hansen; Mette Madsen

doi:10.1017/S0012162206001368

Social integration of adults with cerebral palsy.

Susan Ishøy Michelsen, Peter Uldall, Thomas Hansen, Mette Madsen

47 Citationer (Scopus)

Abstract

Social integration and independence is the ultimate goal of habilitation and social support for patients with cerebral palsy (CP). Having a partner and having children provide support for social integration of adults with or without a disability. We studied 416 participants with CP born between 1965 and 1970 (243 males, 173 females; mean age 32 y 2 mo [SD 2 y]; age range 29-35 y) and compared them with 2247 age-matched comparison individuals. Diagnostic subtypes of the 416 participants were: 31% hemiplegia, 49% diplegia, 11% tetraplegia, and 9% other types. The level of motor impairment, estimated in childhood, with regard to walking ability was 65% able to walk without assistance, 22% with assistance, and 12% not able to walk (for 1% of the participants their walking ability was not known). We found no sign of increased social integration over the past two or three decades in Denmark. Sixty-eight per cent lived independently, 13% lived with their parents, and 16% lived at an accommodation facility arranged by the county (institution). Twenty-eight per cent of the participants were cohabiting and 19% had children. The presence of epilepsy and the severity of physical or cognitive impairment as assessed in childhood predicted independent living and physical and cognitive impairment predicted cohabitation, but parents' socioeconomic position and region of living did not. Fifty-five percent of the participants, compared with 4% of the comparison group, had no competitive employment, cohabiting partner, or biological children. The remaining participants had at least one of these types of social contact, but this more optimally socially integrated half of the participants only combined all three types of social contact half as often as the comparison group. This could be due to cognitive difficulties or premature ageing.
Udgivelsesdato: 2006-Aug

Originalsprog	Engelsk
Tidsskrift	Developmental Medicine and Child Neurology
Vol/bind	48
Udgave nummer	8
Sider (fra-til)	643-9
Antal sider	6
ISSN	0012-1622
DOI	https://doi.org/10.1017/S0012162206001368
Status	Udgivet - 2006

Adgang til dokumentet

10.1017/S0012162206001368

Citationsformater

@article{74092b50ff6511dcbee902004c4f4f50,

title = "Social integration of adults with cerebral palsy.",

abstract = "Social integration and independence is the ultimate goal of habilitation and social support for patients with cerebral palsy (CP). Having a partner and having children provide support for social integration of adults with or without a disability. We studied 416 participants with CP born between 1965 and 1970 (243 males, 173 females; mean age 32 y 2 mo [SD 2 y]; age range 29-35 y) and compared them with 2247 age-matched comparison individuals. Diagnostic subtypes of the 416 participants were: 31% hemiplegia, 49% diplegia, 11% tetraplegia, and 9% other types. The level of motor impairment, estimated in childhood, with regard to walking ability was 65% able to walk without assistance, 22% with assistance, and 12% not able to walk (for 1% of the participants their walking ability was not known). We found no sign of increased social integration over the past two or three decades in Denmark. Sixty-eight per cent lived independently, 13% lived with their parents, and 16% lived at an accommodation facility arranged by the county (institution). Twenty-eight per cent of the participants were cohabiting and 19% had children. The presence of epilepsy and the severity of physical or cognitive impairment as assessed in childhood predicted independent living and physical and cognitive impairment predicted cohabitation, but parents' socioeconomic position and region of living did not. Fifty-five percent of the participants, compared with 4% of the comparison group, had no competitive employment, cohabiting partner, or biological children. The remaining participants had at least one of these types of social contact, but this more optimally socially integrated half of the participants only combined all three types of social contact half as often as the comparison group. This could be due to cognitive difficulties or premature ageing. Udgivelsesdato: 2006-Aug",

author = "Michelsen, {Susan Ish{\o}y} and Peter Uldall and Thomas Hansen and Mette Madsen",

note = "Keywords: Activities of Daily Living; Adult; Case-Control Studies; Cerebral Palsy; Denmark; Educational Status; Employment; Family Characteristics; Female; Humans; Institutionalization; Interpersonal Relations; Male; Registries; Severity of Illness Index; Social Environment; Socioeconomic Factors",

year = "2006",

doi = "10.1017/S0012162206001368",

language = "English",

volume = "48",

pages = "643--9",

journal = "Developmental medicine and child neurology. Supplement",

issn = "0419-0238",

publisher = "Wiley-Blackwell",

number = "8",

}

TY - JOUR

T1 - Social integration of adults with cerebral palsy.

AU - Michelsen, Susan Ishøy

AU - Uldall, Peter

AU - Hansen, Thomas

AU - Madsen, Mette

N1 - Keywords: Activities of Daily Living; Adult; Case-Control Studies; Cerebral Palsy; Denmark; Educational Status; Employment; Family Characteristics; Female; Humans; Institutionalization; Interpersonal Relations; Male; Registries; Severity of Illness Index; Social Environment; Socioeconomic Factors

PY - 2006

Y1 - 2006

N2 - Social integration and independence is the ultimate goal of habilitation and social support for patients with cerebral palsy (CP). Having a partner and having children provide support for social integration of adults with or without a disability. We studied 416 participants with CP born between 1965 and 1970 (243 males, 173 females; mean age 32 y 2 mo [SD 2 y]; age range 29-35 y) and compared them with 2247 age-matched comparison individuals. Diagnostic subtypes of the 416 participants were: 31% hemiplegia, 49% diplegia, 11% tetraplegia, and 9% other types. The level of motor impairment, estimated in childhood, with regard to walking ability was 65% able to walk without assistance, 22% with assistance, and 12% not able to walk (for 1% of the participants their walking ability was not known). We found no sign of increased social integration over the past two or three decades in Denmark. Sixty-eight per cent lived independently, 13% lived with their parents, and 16% lived at an accommodation facility arranged by the county (institution). Twenty-eight per cent of the participants were cohabiting and 19% had children. The presence of epilepsy and the severity of physical or cognitive impairment as assessed in childhood predicted independent living and physical and cognitive impairment predicted cohabitation, but parents' socioeconomic position and region of living did not. Fifty-five percent of the participants, compared with 4% of the comparison group, had no competitive employment, cohabiting partner, or biological children. The remaining participants had at least one of these types of social contact, but this more optimally socially integrated half of the participants only combined all three types of social contact half as often as the comparison group. This could be due to cognitive difficulties or premature ageing. Udgivelsesdato: 2006-Aug

AB - Social integration and independence is the ultimate goal of habilitation and social support for patients with cerebral palsy (CP). Having a partner and having children provide support for social integration of adults with or without a disability. We studied 416 participants with CP born between 1965 and 1970 (243 males, 173 females; mean age 32 y 2 mo [SD 2 y]; age range 29-35 y) and compared them with 2247 age-matched comparison individuals. Diagnostic subtypes of the 416 participants were: 31% hemiplegia, 49% diplegia, 11% tetraplegia, and 9% other types. The level of motor impairment, estimated in childhood, with regard to walking ability was 65% able to walk without assistance, 22% with assistance, and 12% not able to walk (for 1% of the participants their walking ability was not known). We found no sign of increased social integration over the past two or three decades in Denmark. Sixty-eight per cent lived independently, 13% lived with their parents, and 16% lived at an accommodation facility arranged by the county (institution). Twenty-eight per cent of the participants were cohabiting and 19% had children. The presence of epilepsy and the severity of physical or cognitive impairment as assessed in childhood predicted independent living and physical and cognitive impairment predicted cohabitation, but parents' socioeconomic position and region of living did not. Fifty-five percent of the participants, compared with 4% of the comparison group, had no competitive employment, cohabiting partner, or biological children. The remaining participants had at least one of these types of social contact, but this more optimally socially integrated half of the participants only combined all three types of social contact half as often as the comparison group. This could be due to cognitive difficulties or premature ageing. Udgivelsesdato: 2006-Aug

U2 - 10.1017/S0012162206001368

DO - 10.1017/S0012162206001368

M3 - Journal article

C2 - 16836775

SN - 0419-0238

VL - 48

SP - 643

EP - 649

JO - Developmental medicine and child neurology. Supplement

JF - Developmental medicine and child neurology. Supplement

IS - 8

ER -