Quality of life in non-melanoma skin cancer--the skin cancer quality of life (SCQoL) questionnaire

TY - JOUR

T1 - Quality of life in non-melanoma skin cancer--the skin cancer quality of life (SCQoL) questionnaire

AU - Vinding, Gabrielle Randskov

AU - Christensen, Karl Bang

AU - Esmann, Solveig

AU - Olesen, Anne Braae

AU - Jemec, Gregor B E

N1 - © 2013 by the American Society for Dermatologic Surgery, Inc. Published by Wiley Periodicals, Inc.

PY - 2013/12

Y1 - 2013/12

N2 - BACKGROUND: Disease-specific quality of life (QoL) questionnaires are increasingly used to provide patient-reported out-come measures in both malignant and non-malignant disease.OBJECTIVE: To create, validate and test the psychometrics of the Skin Cancer Quality of Life (SCQoL), which was designed to measure health-related QoL in patients with non-melanoma skin cancer affecting any area and undergoing any therapy.METHODS AND MATERIALS: The SCQoL was developed in a stepwise approach. Three pilot studies (testing content and face validity) and psychometric testing (scale structure, reliability, domains and known-groups validity, concurrent and convergent validity) were conducted. Rasch analyses were performed on the final questionnaire.RESULTS: The initial 10-item questionnaire was reduced to 9 items following interviews and inter-item correlations. The nine item scale was confirmed by Item Response Theory (IRT) and internal consistency. Differential Item Functioning (DIF) was found for a single item, but the effect was small.CONCLUSION: The final 9-item SCQoL is unidimensional and consists of 3 domains covering function, emotions and control. Furthermore there is one single global item. The total score range from 0 to 27. Higher score denote a greater impairment of the QoL.

AB - BACKGROUND: Disease-specific quality of life (QoL) questionnaires are increasingly used to provide patient-reported out-come measures in both malignant and non-malignant disease.OBJECTIVE: To create, validate and test the psychometrics of the Skin Cancer Quality of Life (SCQoL), which was designed to measure health-related QoL in patients with non-melanoma skin cancer affecting any area and undergoing any therapy.METHODS AND MATERIALS: The SCQoL was developed in a stepwise approach. Three pilot studies (testing content and face validity) and psychometric testing (scale structure, reliability, domains and known-groups validity, concurrent and convergent validity) were conducted. Rasch analyses were performed on the final questionnaire.RESULTS: The initial 10-item questionnaire was reduced to 9 items following interviews and inter-item correlations. The nine item scale was confirmed by Item Response Theory (IRT) and internal consistency. Differential Item Functioning (DIF) was found for a single item, but the effect was small.CONCLUSION: The final 9-item SCQoL is unidimensional and consists of 3 domains covering function, emotions and control. Furthermore there is one single global item. The total score range from 0 to 27. Higher score denote a greater impairment of the QoL.

KW - Adult

KW - Aged

KW - Aged, 80 and over

KW - Female

KW - Humans

KW - Male

KW - Middle Aged

KW - Pilot Projects

KW - Psychometrics

KW - Quality of Life

KW - Questionnaires

KW - Skin Neoplasms

U2 - 10.1111/dsu.12353

DO - 10.1111/dsu.12353

M3 - Journal article

C2 - 24237851

SN - 1076-0512

VL - 39

SP - 1784

EP - 1793

JO - Dermatologic Surgery

JF - Dermatologic Surgery

IS - 12

ER -