TY - JOUR
T1 - Psychosocial impact of hidradenitis suppurativa
T2 - A qualitative study
AU - Esmann, S.
AU - Jemec, G.B.E.
PY - 2011/5/1
Y1 - 2011/5/1
N2 - Hidradenitis suppurativa influences patients' lives in many ways. It is therefore necessary to focus on the effects of the disease on daily life in order better to define patient-related outcomes in hidradenitis suppurativa studies. Interviews were conducted with 12 patients with hidradenitis suppurativa. Initial single interviews were followed by semi-structured and structured qualitative focus group interviews in order to improve the richness of the data and obtain in-depth understanding of the impact of the topics. Important topics were found to relate to aspects of interpersonal contact, especially in relation to smell and appearance, various emotional reactions, and feelings of lack of control. It was found that hidra-denitis suppurativa has a great emotional impact on patients and promotes isolation due to fear of stigmati-zation. Shame and irritation are frequent and relate to smell, scars, itching and pain. Quality of life is adversely affected and professional support is needed.
AB - Hidradenitis suppurativa influences patients' lives in many ways. It is therefore necessary to focus on the effects of the disease on daily life in order better to define patient-related outcomes in hidradenitis suppurativa studies. Interviews were conducted with 12 patients with hidradenitis suppurativa. Initial single interviews were followed by semi-structured and structured qualitative focus group interviews in order to improve the richness of the data and obtain in-depth understanding of the impact of the topics. Important topics were found to relate to aspects of interpersonal contact, especially in relation to smell and appearance, various emotional reactions, and feelings of lack of control. It was found that hidra-denitis suppurativa has a great emotional impact on patients and promotes isolation due to fear of stigmati-zation. Shame and irritation are frequent and relate to smell, scars, itching and pain. Quality of life is adversely affected and professional support is needed.
UR - http://www.scopus.com/inward/record.url?scp=79955767562&partnerID=8YFLogxK
U2 - 10.2340/00015555-1082
DO - 10.2340/00015555-1082
M3 - Journal article
C2 - 21394419
AN - SCOPUS:79955767562
SN - 0001-5555
VL - 91
SP - 328
EP - 332
JO - Acta Dermato-Venereologica
JF - Acta Dermato-Venereologica
IS - 3
ER -