Constructing populations in biobanking

Aaro Tupasela; Karoliina Snell; Jose a. Cañada

doi:10.1186/s40504-015-0024-0

Constructing populations in biobanking

Aaro Tupasela, Karoliina Snell, Jose a. Cañada

15 Citationer (Scopus)

Abstract

This article poses the question of whether biobanking practices and standards are giving rise to the construction of populations from which various biobanking initiatives increasingly draw on for legitimacy? We argue that although recent biobanking policies encourage various forms of engagement with publics to ensure legitimacy, different biobanks conceptualize their engagement strategies very differently. We suggest that biobanks undertake a broad range of different strategies with regard to engagement. We argue that these different approaches to engagement strategies are contributing to the construction of populations, whereby specific nationalities, communities, societies, patient groups and political systems become imbued or bio-objectified with particular characteristics, such as compliant, distant, positive, commercialized or authoritarian. This bio-objectification process is problematic in relation to policy aspirations ascribed to biobanking engagement since it gives rise to reified notions of different populations.

Originalsprog	Engelsk
Tidsskrift	Life Sciences, Society and Policy
Vol/bind	11
Udgave nummer	5
Antal sider	18
ISSN	2195-7819
DOI	https://doi.org/10.1186/s40504-015-0024-0
Status	Udgivet - 1 dec. 2015

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10.1186/s40504-015-0024-0Licens: CC BY

s40504-015-0024-0Forlagets udgivne version, 480 KBLicens: CC BY

Citationsformater

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AU - Snell, Karoliina

AU - Cañada, Jose a.

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AB - This article poses the question of whether biobanking practices and standards are giving rise to the construction of populations from which various biobanking initiatives increasingly draw on for legitimacy? We argue that although recent biobanking policies encourage various forms of engagement with publics to ensure legitimacy, different biobanks conceptualize their engagement strategies very differently. We suggest that biobanks undertake a broad range of different strategies with regard to engagement. We argue that these different approaches to engagement strategies are contributing to the construction of populations, whereby specific nationalities, communities, societies, patient groups and political systems become imbued or bio-objectified with particular characteristics, such as compliant, distant, positive, commercialized or authoritarian. This bio-objectification process is problematic in relation to policy aspirations ascribed to biobanking engagement since it gives rise to reified notions of different populations.

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Constructing populations in biobanking

Abstract

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