Alignment of concerns: a design rationale for patient participation in eHealth

Tariq Osman Andersen; Jørgen P. Bansler; Finn Kensing; Jonas Moll; Karen Dam Nielsen

doi:10.1109/HICSS.2014.327

Alignment of concerns: a design rationale for patient participation in eHealth

Tariq Osman Andersen, Jørgen P. Bansler, Finn Kensing, Jonas Moll, Karen Dam Nielsen

23 Citationer (Scopus)

1822 Downloads (Pure)

Abstract

The emergence of patient-centered eHealth systems introduces new challenges, where patients come to play an increasingly important role. Realizing the promises requires an in-depth understanding of not only the technology, but also the needs of both clinicians and patients. However, insights from medical phenomenology bring forth how physicians and patients focus on different aspects of illness and that they often have starkly divergent concerns. This has important implications for the design of eHealth systems that seek to engage patients as active participants. We emphasize the crucial importance of acknowledging these fundamental differences between patients' and physicians' everyday projects and we illustrate it by three case examples from a participatory design project of constructing a personal health record for chronic heart patients and their clinicians. We summarize our suggestion as a design rationale for successful eHealth, termed 'alignment of concerns'.

Originalsprog	Engelsk
Titel	2014 47th Hawaii International Conference on System Sciences (HICSS)
Antal sider	10
Forlag	IEEE
Publikationsdato	2014
Sider	2587-2596
ISBN (Elektronisk)	978-1-4799-2504-9
DOI	https://doi.org/10.1109/HICSS.2014.327
Status	Udgivet - 2014
Begivenhed	Hawaii International Conference on System Sciences (HICSS) 2014 - Hawaii, USA Varighed: 6 jan. 2014 → 9 jan. 2014 Konferencens nummer: 47

Konference

Konference	Hawaii International Conference on System Sciences (HICSS) 2014
Nummer	47
Land/Område	USA
By	Hawaii
Periode	06/01/2014 → 09/01/2014

Emneord

behavioural sciences computing
electronic health records
patient treatment
alignment of concern
chronic heart patient
medical phenomenology
participatory design project
patient participation
patient-centered eHealth system
personal health record
Diseases
Heart
Hospitals
Interviews
Medical diagnostic imaging
Prototypes
ehealth
medical informatics
participatory design

Adgang til dokumentet

10.1109/HICSS.2014.327Licens: Ikke-specificeret

Alignment of Concerns: A Design Rationale for Patient Participation in eHealthForlagets udgivne version, 164 KBLicens: Ikke-specificeret

Citationsformater

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title = "Alignment of concerns: a design rationale for patient participation in eHealth",

abstract = "The emergence of patient-centered eHealth systems introduces new challenges, where patients come to play an increasingly important role. Realizing the promises requires an in-depth understanding of not only the technology, but also the needs of both clinicians and patients. However, insights from medical phenomenology bring forth how physicians and patients focus on different aspects of illness and that they often have starkly divergent concerns. This has important implications for the design of eHealth systems that seek to engage patients as active participants. We emphasize the crucial importance of acknowledging these fundamental differences between patients' and physicians' everyday projects and we illustrate it by three case examples from a participatory design project of constructing a personal health record for chronic heart patients and their clinicians. We summarize our suggestion as a design rationale for successful eHealth, termed 'alignment of concerns'.",

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author = "Andersen, {Tariq Osman} and Bansler, {J{\o}rgen P.} and Finn Kensing and Jonas Moll and Nielsen, {Karen Dam}",

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AU - Bansler, Jørgen P.

AU - Kensing, Finn

AU - Moll, Jonas

AU - Nielsen, Karen Dam

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PY - 2014

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AB - The emergence of patient-centered eHealth systems introduces new challenges, where patients come to play an increasingly important role. Realizing the promises requires an in-depth understanding of not only the technology, but also the needs of both clinicians and patients. However, insights from medical phenomenology bring forth how physicians and patients focus on different aspects of illness and that they often have starkly divergent concerns. This has important implications for the design of eHealth systems that seek to engage patients as active participants. We emphasize the crucial importance of acknowledging these fundamental differences between patients' and physicians' everyday projects and we illustrate it by three case examples from a participatory design project of constructing a personal health record for chronic heart patients and their clinicians. We summarize our suggestion as a design rationale for successful eHealth, termed 'alignment of concerns'.

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KW - medical phenomenology

KW - participatory design project

KW - patient participation

KW - patient-centered eHealth system

KW - personal health record

KW - Diseases

KW - Heart

KW - Hospitals

KW - Interviews

KW - Medical diagnostic imaging

KW - Prototypes

KW - ehealth

KW - medical informatics

KW - participatory design

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