Trust, exploitation and vulnerability in consent to biobank research – Experiences from Pakistan

Nana Cecilie Halmsted Kongsholm

Abstract

There is little doubt that consent – be it blanket, broad or informed – is of central ethical importance in the context of medical research, including biobank research. Accordingly, much attention has been focused on developing appropriate consent models that adequately protect the interests of biobank donors. However, this focus risks overlooking important ethical issues in certain specific contexts that are not easily dealt with by a standard consent model.
Drawing on findings from a qualitative interview study with biobank donors from rural Pakistan in lieu of the Global Genes, Local Concerns project, we demonstrate how psychological, cultural and structural factors in this particular context may pose serious ethical challenges that are far from adequately accommodated by (and may in fact thrive under) any standard consent scheme.

Original language	English
Publication date	2017
Publication status	Published - 2017
Event	Global Genes and Local Concerns in Biobanking, Global Genes, Local Concerns: A Symposium on Legal, Ethical and Scientific Challenges in International Biobanking, University of Copenhagen - Copenhagen, Faculty of Law, Copenhagen, Denmark Duration: 15 Mar 2017 → 16 Mar 2017 http://jura.ku.dk/ciir/english/calendar/international-biobanking/

Conference

Conference	Global Genes and Local Concerns in Biobanking, Global Genes, Local Concerns: A Symposium on Legal, Ethical and Scientific Challenges in International Biobanking, University of Copenhagen
Location	Copenhagen, Faculty of Law
Country/Territory	Denmark
City	Copenhagen
Period	15/03/2017 → 16/03/2017
Internet address	http://jura.ku.dk/ciir/english/calendar/international-biobanking/

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Trust, exploitation and vulnerability in consent to biobank research – Experiences from Pakistan. / Kongsholm, Nana Cecilie Halmsted.

2017. Abstract from Global Genes and Local Concerns in Biobanking, Global Genes, Local Concerns: A Symposium on Legal, Ethical and Scientific Challenges in International Biobanking, University of Copenhagen , Copenhagen, Denmark.

Research output: Contribution to conference › Conference abstract for conference › Research › peer-review

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Trust, exploitation and vulnerability in consent to biobank research – Experiences from Pakistan

Abstract

Conference

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