TY - JOUR
T1 - Satisfaction with information provided to Danish cancer patients
T2 - Validation and survey results
AU - Ross, Lone
AU - Petersen, Morten Aagaard
AU - Johnsen, Anna Thit
AU - Lundstrøm, Louise Hyldborg
AU - Grønvold, Mogens
N1 - Copyright © 2013 Elsevier Ireland Ltd. All rights reserved.
PY - 2013/11
Y1 - 2013/11
N2 - Objectives: To validate five items (CPWQ-inf) regarding satisfaction with information provided to cancer patients from health care staff, assess the prevalence of dissatisfaction with this information, and identify factors predicting dissatisfaction. Methods: The questionnaire was validated by patient-observer agreement and cognitive interviews. The prevalence of dissatisfaction was assessed in a cross-sectional sample of all cancer patients in contact with hospitals during the past year in three Danish counties. Results: The validation showed that the CPWQ performed well. Between 3 and 23% of the 1490 participating patients were dissatisfied with each of the measured aspects of information. The highest level of dissatisfaction was reported regarding the guidance, support and help provided when the diagnosis was given. Younger patients were consistently more dissatisfied than older patients. Conclusions: The brief CPWQ performs well for survey purposes. The survey depicts the heterogeneous patient population encountered by hospital staff and showed that younger patients probably had higher expectations or a higher need for information and that those with more severe diagnoses/prognoses require extra care in providing information. Practical implications: Four brief questions can efficiently assess information needs. With increasing demands for information, a wide range of innovative initiatives is needed.
AB - Objectives: To validate five items (CPWQ-inf) regarding satisfaction with information provided to cancer patients from health care staff, assess the prevalence of dissatisfaction with this information, and identify factors predicting dissatisfaction. Methods: The questionnaire was validated by patient-observer agreement and cognitive interviews. The prevalence of dissatisfaction was assessed in a cross-sectional sample of all cancer patients in contact with hospitals during the past year in three Danish counties. Results: The validation showed that the CPWQ performed well. Between 3 and 23% of the 1490 participating patients were dissatisfied with each of the measured aspects of information. The highest level of dissatisfaction was reported regarding the guidance, support and help provided when the diagnosis was given. Younger patients were consistently more dissatisfied than older patients. Conclusions: The brief CPWQ performs well for survey purposes. The survey depicts the heterogeneous patient population encountered by hospital staff and showed that younger patients probably had higher expectations or a higher need for information and that those with more severe diagnoses/prognoses require extra care in providing information. Practical implications: Four brief questions can efficiently assess information needs. With increasing demands for information, a wide range of innovative initiatives is needed.
U2 - 10.1016/j.pec.2013.05.018
DO - 10.1016/j.pec.2013.05.018
M3 - Journal article
C2 - 23806817
SN - 0738-3991
VL - 93
SP - 239
EP - 247
JO - Patient Education and Counseling
JF - Patient Education and Counseling
IS - 2
ER -
